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[2019] AATA 4240
Administrative Appeals Tribunal of Australia
2019-10-16
Original judgment source is linked above.
The Tribunal sets aside the decision made on 27 April 2017 by a National Disability Insurance Agency reviewer to approve a statement of participant supports under the National Disability Insurance Scheme (NDIS) forming part of the Applicant's NDIS plan that commenced on 27 April 2017.
In substitution and with effect from 27 April 2017, the Tribunal decides to approve a new statement of participant supports for the Applicant that includes the following supports:
..........................[sgd]..............................................
NATIONAL DISABILITY INSURANCE SCHEME - review of statement of participant supports - participant with multiple serious and permanent medical conditions - participant has intense and complex support needs - multidisciplinary therapy - practice coaching for support staff - concerns raised about self-management of plan and direct employment of support staff - dispute about the number of hours of speech therapy, occupational therapy and practice coaching required - provision of therapy assistants as an alternative support - method of calculation of transport supports - treatment of successive NDIS plans - decision under review set aside and substituted with decision to approve a new statement of participant supports - extension of review date in statement of participant supports
Disability Act 2006 (Vic)
National Disability Insurance Scheme (Supports for Participants) Rules 2013 (Cth)
Re Ewin and National Disability Insurance Agency [2018] AATA 4726
McGarrigle v National Disability Insurance Agency [2017] FCA 308
Re Williamson and National Disability Insurance Agency [2019] AATA 2944
NDIA Practice Guide - Intensive Super Intensive Participants - Guidance for Planners, LACs and delegates (latest version approved on 13 September 2017)
Social, Community, Home Care and Disability Services Industry Award 2010
Commencement as a participant of the National Disability Insurance Scheme
To make this decision, I have considered the information you supplied to the [NDIA] and the information that we discussed during our conversations. I am satisfied that the supports specified in the plan are reasonable and necessary in accordance with section 34 of the [NDIS Act].
You have requested that the funding for supports that are included in your plan be wholly self-managed. To assess your request, I am required to consider whether self-managing the funding for supports would present an unreasonable risk to you.
Taking into account the information I have available, I have decided to approve your request to self-manage the funding in your NDIS plan.
training and support for staff 10 hours week (practice coach)
individual assessment, therapy and/or training staff 12 hours a month
(c) increased social and community participation, $2,000;
(d) support coordination, $37,220.84;
(e) transport, $2,472 expressed as a contribution towards any transport-related costs; and
(f) core supports, $284,782.98 described as follows:
Funding for your continence products including delivery.
assistance with self-care - overnight - higher intensity 168 hrs per year, to maintain informal support
assistance with self-care activities during daytime weekdays - higher intensity 20 hrs per week
assistance with self-care activities - high intensity composite 504 hrs per year, to maintain informal support
ass to access community, social/rec acts - indiv higher intensity -Sundays 3 hrs a week
ass to access community, social/rec acts - high Intensity composite 35 hrs a week
ass to access community, social/rec acts - standard composite 35hrs a week.
You may request a review of your NDIS participant plan at any time. If you wish to request a review of your plan, you must complete this form and return it to: NDIA [postal address].
The Agency will decide whether or not to conduct a review within 14 days of receiving your request and notify you of the decision in writing.
Areas that require an immediate review of Jake's NDIA plan
Jake's plan is insufficient to meet his required needs to ensure a suitable and sustainable support structure.
Short Term Accommodation
There is no allowance for short term accommodation in Jake's current NDIS Plan. Jake has been receiving monthly respite through St John of God since age 10. Without the provision of appropriate short term accommodation options Jake's current living arrangements will not be sustainable.
Daily Living
The current daily living is incorrectly funded at the individual therapy rate due to the multiple therapies involved in Jake's care. This needs to be reviewed and funded as a Multidisciplinary Team to support the appropriate interventions and management.
Dietician
Planning meeting conducted ... is missing a number of significant items including funding for a Dietician to manage Jake's anorexia...
Overnight in-home care for 2 nights per week to support Janice Castledine maintain her own health and wellbeing.
Operational Requirements of his program
The significant underfunding of the operational requirements of the individualised day program...
Transport
[Funding for a vehicle for safe transportation to and from the day program and community access]
Recruitment campaign
[single occurrence][paid professional recruitment to build a team of qualified and dedicated staff that will support the pursuit of Jake's goals].
Following an internal review meeting at [address] on the 14th February 2017 where Jake's support coordinator was present, I have made an internal review decision on the 27th April 2017 resulting in the current 6 month plan being approved on that date.
If the CEO conducts a review of a participant's plan under section 48, the CEO must facilitate the preparation of a new plan with the participant in accordance with Division 2.
Note 1: If the participant does not wish to change the participant's statement of goals and aspirations, the statement remains unchanged and forms part of the new plan.
Note 2: Because the new plan is prepared in accordance with the Division 2, a decision to approve the statement of participant supports in the plan would be made under subsection 33(2) and be reviewable under paragraph 99(d).
Flexible core support to enable maximum independence in personal activities of daily living are included within this category. These supports can be provided in a range of environments, including but not limited to, the participant's own home and short term accommodation service.
In addition, supports to explore and participate in community based activities (including day program) and supports to access community and civic participation.
History of application for review before this Tribunal
So the positive behaviour support practitioner...comes in, they know the complexity of the participant through an assessment tool that we're trialling at the moment as well and they get a budget of supports and then they will be the ones that are designing the positive behaviour support and the utilisation of those supports, whether it be by therapists, training for staff, monitoring, planning and review and then if they find that part of the way through that planning - like, the plan and the implementation of the plan, for whatever reason, is not enough supports, they come back, plan review, we adjust it according to the evidence.
What Guidestar needed to do, they were giving a comment on practice coaching in isolation - not in an integrated package of support where they are clear about what their role is and isn't and I think that is again one of the complexities that we've got here. Everyone is putting their quotes and comments in, in isolation. In an integrated model of support we would know exactly what Guidestar's function is. We would also know whether the positive behaviour support practitioner - and I know everyone is reporting benefit of the practice coaching, that's really good, but again, that needs to be linked to the positive behaviour support practitioner and their goals and what the outcomes are - not in isolation.
...
I have sought advice through the Australian Psychological Society's legal hotline regarding this request.
I have two issues to raise regarding the matter:
Please advise whether my written opinion is still required in light of the concerns raised above.
Ms Killmier's reference to Mr Castledine's change in circumstances prompted those matters being bought to the attention of the Tribunal
Just as very brief context, unfortunately Jake had an epileptic - suspected epileptic stroke overnight and he is in hospital waiting for marrow to be taken and Janice hasn't slept overnight and she's quite affected. Struggling to engage with us and - - -
MEMBER: Have you been to the hospital a bit earlier today?
MS CASTLEDINE: I haven't had any sleep. We've been awake since 6 o'clock yesterday.
MEMBER: I'm sorry to hear that.
Application held in abeyance while Mr Castledine recovered from a stroke
Further directions hearing on 17 September 2018 to ascertain Mr Castledine's status
Jake is independent and mobile with nil aids.
He is safe and independent with all transfers.
Jake's right hand is more curled in its relaxed grasp position and he requires support to open his hand and practice full range of motion.
It has been reported that Jake is more fatigued.
Jake has experienced a number of seizures since returning to his usual day program - this usually occurs if he is over exerted.
Seizure length has been longer than usual - Janice following up with neurologist.
Communication skills have returned to pre-stroke capacity.
Jake's support team were not able to remain available for shifts during the unknow[n] periods without work. This has meant that there has been a significant change in Jake's support team. This has also meant that more of a focus in therapy sessions has been aimed at training new support workers, and educating the team about changes in Jake's circumstances. This includes - changes in functional abilities, communication style, endurance, fatigue, consistency in rapport.
Jake's current presentation is similar to his pre-stroke level [o]f function; however if he is experiencing higher levels of fatigue as a result of reduced endurance caused by his stroke; this can impact on a broad range of his day to day activities. This also impacts on the level of support Jake requires on each day. Jake's capacity and support needs can fluctuate day to day.
However, in general; Jake has been able to participate in most activities that he was doing pre-stroke, with increased monitoring for signs of fatigue and tailored participation...
Allied health supports are to explore a number of changes in Jake's transition into independent living. Jake will require a multidisciplinary approach that is guided by specialist psychology. Allied health intervention is to be goal oriented and will aim to enhance emotional self-regulation, reduced physical aggression and promote positive community connections and development to mainstream supports. Allied health is to also explore the new environmental needs at Willis Street. Allied health is to progress towards Jake's goal of independent living. A comprehensive transition plan is to be developed.
(ii) $18,500.00 for Improved Relationships described as:
Specialist Psychology to guide and develop the care support team and allied health professionals. Specialist psychology to ensure governance of the supports and are personalised to Jake, ensure sufficient staff knowledge and ongoing development in support strategies, facilitate accurate behavioural data tracking. Further ecological and environmental assessments will be required with the transition to independent living for Jake. Specialised psychology support services are to work closely with the chosen specialist support coordinator to ensure effective development and implementation of new plan, and the recommendations made in the Guidestar [BAR]. All reports and data is to be collated and sent to the NDIS prior to the next review.
(iii) $21,928.80 (NDIA-managed) for specialist Support Coordination;
(c) $600 for Assistive Technology.
Specialist support coordination is to address barriers and reduce the complexities of the participant environment. Connect Jake with multiple complex supports needs including but not limited to a multidisciplinary allied health team, practice coaching and diversional therapy. Specialist support coordination to also build capacity of informal supports to coordinate and self-implement plan.
(c) NDIA-managed Capital Supports funding comprising $600 for Assistive Technology and further unspecified funding (because a quote is required) for the Stated Support of specialist disability accommodation that aims to support Mr Castledine's needs.
Ms Parsons adopts an approach based upon what is considered best practice, advocating for an interdisciplinary approach to Jake's support where "the group of professionals from diverse fields work in a coordinated fashion toward a common goal for Jake". In her opinion, a funding model overseen by a qualified positive behavioural support practitioner (i.e. Guidestar) provides flexibility in administering the plan, directing funds to where they are best used after the coordination of Jake's supports have been worked out. If increases in funding are needed, there is scope for a review in future. On the other hand, as developed below, the recommendations of Ms Cohen and Ms Greiner are neither coordinated nor integrated. The recommendations, therefore, have the potential to contain inefficiencies (including 'doubling up') and to replicate past failures.
The Agency's position in this proceeding involves a premature and dramatic reduction/removal of key support planks for this Applicant (i.e. 144 therapy hours reduced to 100 hours, 520 hours of Practice Coaching support cut down to 76 hours). The Applicant submits that the Agency's position should be rejected as it undermines the clinical efficacy of the integrated model of supports. It forces the therapists and other professionals directly involved in the care of Jake to substantially modify and compromise their strategies and implementation with a negative flow on effect on Jake and his well-being.
There are two issues, it seems to me, looking at the statements of position, one being - it doesn't seem to me we're actually very far apart in what we see as the relevant legal analysis. The question from us is: (1) how much of this travel is really directly connected to Jake's disability and how much something else; and then the second issue is what hourly rate really should be applied - sorry, I mean kilometre rate - should it be the 66 cents or should it be the 77 cents; and what is the underlying idea behind that.
A participant's plan comes into effect when the CEO has:
(a) received the participant's statement of goals and aspirations from the participant; and
(b) approved the statement of participant supports.
Short-term goals
To become more independent within everyday life, including over the next 12 months. Whilst strengthening my relationships with my family and the community.
To be safe in the community and improve the quality of my community access while building meaningful volunteer and work opportunities.
Medium or long-term goals
To make a wide circle of friends who share my interests.
To have support to make decisions in my life through voluntary circles or Boards.
I would like to move to a modified robust property that meets my complex support needs to build independence and opportunity to live with people other than my parents.
Self-management arrangement - not an issue for determination
Therapists' travel time - not an issue for determination (liberty to apply)
31 Principles relating to plans
The preparation, review and replacement of a participant's plan, and the management of the funding for supports under a participant's plan, should so far as reasonably practicable:
(a) be individualised; and
(b) be directed by the participant; and
(c) where relevant, consider and respect the role of family, carers and other persons who are significant in the life of the participant; and
(d) where possible, strengthen and build capacity of families and carers to support participants who are children; and
(da) if the participant and the participant's carer agree - strengthen and build the capacity of families and carers to support the participant in adult life; and
(e) consider the availability to the participant of informal support and other support services generally available to any person in the community; and
(f) support communities to respond to the individual goals and needs of participants; and
(g) be underpinned by the right of the participant to exercise control over his or her own life; and
(h) advance the inclusion and participation in the community of the participant with the aim of achieving his or her individual aspirations; and
(i) maximise the choice and independence of the participant; and
(j) facilitate tailored and flexible responses to the individual goals and needs of the participant; and
(k) provide the context for the provision of disability services to the participant and, where appropriate, coordinate the delivery of disability services where there is more than one disability service provider.
For the purposes of specifying, in a statement of participant supports, the general supports that will be provided, and the reasonable and necessary supports that will be funded, the CEO must be satisfied of all of the following in relation to the funding or provision of each such support:
(a) the support will assist the participant to pursue the goals, objectives and aspirations included in the participant's statement of goals and aspirations;
(b) the support will assist the participant to undertake activities, so as to facilitate the participant's social and economic participation;
(c) the support represents value for money in that the costs of the support are reasonable, relative to both the benefits achieved and the cost of alternative support;
(d) the support will be, or is likely to be, effective and beneficial for the participant, having regard to current good practice;
(e) the funding or provision of the support takes account of what it is reasonable to expect families, carers, informal networks and community to provide;
(f) the support is most appropriately funded or provided through the [NDIS], and is not more appropriately funded or provided through other general systems of service delivery or support services offered by a person, agency or body, or systems of service delivery or support services offered:
(i) as part of a universal service obligation; or
(ii) in accordance with reasonable adjustments required under a law dealing with discrimination on the basis of disability.
The rules are legislative instruments to be made by the Minister: see s 209. Section 209, sub-paras (4) and (7) constrain the rule-making power to preserve the federal characteristics of the NDIS. The [Support Rules] are an important element of the legislative scheme, introducing the ability to modify the operation of ss 33 and 34 by, for example, excluding certain kinds of supports from inclusion in participant plans. It is through the Rules that the executive is able to implement, within the federalism constraints imposed in s 209, some policy decision-making about the nature and extent of supports to be provided or funded under the NDIS.
EVIDENCE IN SUPPORT OF MR CASTLEDINE'S POSITION
My greatest fear is that my son, who has a very heavy traumatic past, will be sat in the corner and do nothing and that is my fear.
Part of the service coordination is to keep looking and enquiring and finding out where these services are and as the NDIA is developing, develop the framework that intensive support is needed for people like my son. And at the moment it doesn't exist.
They provide for us the coordination of - it's been quite complex in the fact that they have not fully understood the role and that's an issue that we've had within the industry, so it's not just for me, it's widely. So they were brought on board to provide service provision for Jake to consolidate - sorry - therapy to consolidate any issues that I have such as Office of Public Housing issues around the house that may be going on. They have supported us through meetings and they've come to various meetings for her. The whole role of that is to bring the services together in a cohesive manner to - but I don't do that and I haven't been doing it. That's their role.
Incidences of self injury and aggression can have a profound effect on the staff capacity to implement support plans. A positive unit culture and a focus on [a] person's centeredness also requires systems to support staff maintain the capacity, behaviour support, principles highlight the need for effective diffusing and debriefing supports. A specified protocol around incident diffusing is recommended. A formal debriefing session should be routinely available to staff. It is also acknowledged that incident activated debriefing as a strategy on its own commonly wanes over time. Services for clients such as Jake could utilise an augmented system of regular operational debriefing to best achieve the aims of such and issues.
Therapists working in isolation simply does not work for Jake and his support staff. There needs to be a fully functioning multi-disciplinary team and a coherent, cohesive framework where both the Practice Coach and the MDT would be able to share critical information and expertise on managing Jake's complex needs, build up the collective knowledge with the aim of empowering him and his support staff proactively.
Jake's progress in coping with his anxiety and the ability of his carers to proactively support him responding to his internal triggers is critical for a successful transition. Intense and ongoing professional guidance by a fully functional MDT (with adequately funded therapy hours, behaviour support, staff training and practice coaching) is a fundamental plank to achieve this goal.
Ms Susan Fowler's evidence - previous occupational therapist
Working on the nervous system of people who have experienced trauma takes skilled workers and an understanding of trauma. The relational work takes time as Jake needs to get to know and trust people to stay safe.
Heather Lambert is the new team leader who has also attended a PBS (Positive Behaviour Support) coaches program. Heather is modelling good practice with a PBS approach and an understanding of trauma and emotional regulation. Regular contact with the team leader, either in person or over the phone and email has enabled OT strategies to be implemented and reflected on.[84]
An analysis of my observations showed that Jake was struggling to complete ADL in a regulated way. To illustrate, he would complete some tasks but did so demonstrating high arousal e.g. shouting, kicking doors, slamming the fridge door open and throwing objects. It appeared as if he was only complying with the task rather than learning how to do the task independently. The primary goal was to support Jake become(sic) as independent as possible. In order to achieve this it was becoming apparent that work first needed to be done on working on his arousal levels so that he was in the "just right" zone of arousal to learn.[88]
So, the PBS model actually looks at all the different background factors in patching up behaviour. So, it might be communication issues, trauma, sensory processing, [and] cognitive ability. So, I mean, I suppose, we are a multidisciplinary team, because you're looking at lots of different factors impacting on behaviour.
Look, you know, it's actually a very difficult one. Because, it actually depends on the skills of the staff. Like, if you have got somebody like the team leader that you have now, I think, you know, she could run a lot of that herself, however there is a lot of pressure on her and she has got a lot of hours direct with Jake. I would actually like to see her role of somebody who had sort of, less hands on, who could oversee some of the recommendations from the OT.[96]
I don't think - I think Jake doesn't need two OT's, which is what I told the manager for service, which is why I pulled out. I thought it was unnecessary. So, I think she can, she doesn't - he doesn't need to have a lead OT and a local OT, he just needs one OT.
Well, to be honest, I haven't come across therapy assistants for a very long time. I know that we don't have them in Scope anymore and I'm not sure that I want a therapy assistant as such, but what I would - what I think would work better, is a lead person in the team, who was the conduit between the therapist and the team. Because, I think it's more than just - I wouldn't want somebody just to be doing OT. I think with a PBS approach, it's actually - it's a team approach and it's looking at the environment, the skills, the reflections of the staff - how they interact with the person. So, I would like somebody who was trained up in that, to make sure things were happening on the ground, rather than an OT assistant per se.
I think, originally, I asked for about 22 hours, but I notice that Hannah is asking for more, but I think she was going to do more face to face. I mean, for me, you know, that's a tyranny of distance. I'm over 300 kilometres away which was why I was trying to do it remotely, with much more video footage and then trying to catch up when I was in town...
Actually, it's interesting you say that, because at one stage I was questioning why you need a practice coach and the OT. So, what the team leader said to me was that, the OT was very much looking at those microscopic behaviours for interaction and arousal levels. So really teaching them the skills to keep Jake in the interaction and to keep his arousal levels down. My understanding from Guidestar is that they're looking at a much broader picture where, if there's been a behaviour of concern, they're reflecting on, what were the triggers for that, what was the environment, so what was the background factors, what was the environment, what were the consequences.
So, my understanding is, they're reflecting much on the behaviour, the concern, whereas the OT was actually trying to look at things proactively to stop those things happening, so looking at those interactions to make sure his arousal level stays in the green zone. Because, yes, I was confused myself for a bit. I thought, why on earth do you need two types, but a team leader clarified for me, you're looking at different things.
Ms Hanna Cohen's evidence - current occupational therapist
It is recommended that OT input is provided in the following ways to support Jake and his team to achieve his goals over the next 6-month plan period:
In order to support Jake and his team with his goals to extend interactions and participation in meaningful tasks - regular contact with his team is recommended to be provided in the following ways:
The regular input provided will focus on all goal areas (community life, showering, personal care, participation in life activities, incorporation of sensory stimulating activities that support arousal levels and positive behaviour.
- Attendance at 4x support team meetings (3 hours each) per year (12 hours per year)
Collating information provided by all of Jake's support team and facilitating group training/sharing of information (4 x year) to ensure the most positive interactions and participation is being achieved.
Going through sensory profile/diet, arousal levels, interactions
Going through positive behaviour support plan
Aiming to reduce reliance on Heather as main person sharing information.
- Attendance at 4x multidisciplinary team meetings - speech, OT, psych etc, (3 hours each) per year (12 hours per year)
- 30 mins fortnightly for video reflections of interactions between Jake and his support workers ... (12 hours per year)
- 1 hour face to face mentoring and coaching provided every other fortnight to Jake's support team (at home, community and day house) - spending 1 hour with a different support worker each visit. (24 hours per year)
- 3 hours per year to provide a thorough progress update in preparation for next NDIS plan period of recommended.
Additional OT input in this next plan may also be required for:
Total Occupational Therapy Hours Recommended
63 hours per year
Plus:
9 hours for specific reports for environment, support needs and car assessment.
Total Travel Hours That Will Be Claimed per Home Visit
Not that I - I think we need to do that, yes. I don't think that we're quite there yet, and that's something that we hoping to work towards as a team, and I think most people involved have said yes, we need to establish it and work forward to keep doing that.
MS COHEN: So, all of those conversations were had very openly with Jake's family and support team, to work out what would work best for them and how they wanted to sort of, get that sort of, mentoring and coaching and opportunities to reflect on what is working. Yes, so that's how it's developed.
COUNSEL FOR NDIA: Okay. So, much of your thinking was guided by what was coming from the support workers and Janice as to what they felt they needed and what would be helpful to them, as much as you looking at the goals, identifying what you needed to do to meet those goals with Jake?
MS COHEN:---Yes, yes. I would say that is right.
I think there is a huge amount that can be done for the people surrounding Jake to build their skills, to help him have a better life and be more independent and have more access to social opportunities outside of funded support.
The transition to living in his own home and the opportunity to build up skills and seeing what he is able to do right now with the support that he has got and seeing how having more positive interactions with other people has extended his ability to engage in activities in the short amount of time that I have worked with him, I do see that he has got the potential to build up many independent living skills and a lot of those skills are starting to need to be developed because of the transition out of the home and you know, I think some of the evidence which suggest that in key transition phases of people's lives, such as moving out of home, they will need more intensity in bursts of therapy intervention and additional support. So, yes, that hopefully explains where I am coming from and of course, there is an optimism that I hope Jake will succeed in the goals that we've set, but they are very much developed with the people who know Jake quite well to keep them realistic.
Ms Victoria Zainal's evidence - previous speech therapist
Jake is a young man with significantly impaired receptive and expressive communication as a result of Intellectual Disability, Autism and trauma. Jake's limited communication and behaviours of concern mean that he is extremely challenging to work with as he requires an increased length of time to get to know staff before he feels comfortable with them, and they with him. Even then, Jake has difficulties with his sensory issues and levels of arousal (see reports from Scope Occupational Therapist and Psychologist). Jake requires 2:1 support due to his behaviours of concern and for the safety of staff supporting him. Jake is able to learn new skills but requires many repetitions, patience, consistency and dedication from knowledgeable staff. This can only be achieved through sharing information and learning the strategies that work for Jake. These strategies include use of Augmented and Alternative communication such as Visual supports (photographs), communication Apps such as "First/Then" and Proloquo2go to name a few. Improvement in Jake's communication skills will be a long term goal.
When he does go into public places there's very little interaction with people because Jake likes to be with - by himself. He doesn't like to interact with people. He likes his space, and these are all things that Janice told me when I first started working with Jake...
... For a lot of us our learning comes down to motivation, and at the moment Jake actually is, I think, quite comfortable, in my professional opinion, with the vocabulary he has. So we would need to be very, very careful in selecting what vocabulary we think Jake needs, and make sure that the vocabulary is taught in an environment, or in the correct context, so that he can learn the meaning of it and see that there's a positive outcome for it, because if Jake doesn't get an outcome from it, it won't be done. So I think in the long-term, it is a long-term goal, a very long-term goal.
Jake needs consistency and repetition to learn. He needs consistency to continue to know what he knows. Part of what we know about epilepsy for instance, is that every time that he has an epileptic seizure there is a risk that it is affecting his memory. So what that means is that Jake needs reinforcement, over and over again to even just stay - you know, he worked really hard to just stay at the same level of ability from one day to the next. Let alone if he's having epileptic seizures. Now he was to end up with 100 hours of therapy and I'm assuming that is shared between occupational therapy and speech pathology, that wouldn't even cover one hour per week of a speech pathologist coming in to support the staff, see Jake, make changes et cetera. It's not enough, it's just not enough.
...Capacity building will require ongoing input and repeated opportunities to practice in a safe and supportive learning environment (e.g. 1:1 community outings). Input will be required for staff training to understand Jake's communication cues more effectively and thus being able to support him better.
I wouldn't anticipate to have intensive input, let's say five years down the track. I would anticipate to have upskilled Jake enough, including his supports, that I don't need to be there as intensive as right now.
Okay, so based on or having a look at [Ms Zainal's] report, what she has done in the past and what sort of outcome she has achieved, and then we had a look at how we can take what she has done already without doubling up and doing the same things again - having a look at what's worked and moving on and developing Jake's skills - I wanted to use the word developing and then had a look at some of the things or challenges that she had to move on with some of the stuff, and that's where we identified that we need the capacity building, and that's how it arrived to the 80 hours.
Ms Helen Killmier's evidence - supervising psychologist and CEO, Guidestar
So it's really a very close analysis of what happened and what might have happened differently and trying to capacity build the staff so that next time there's a new strategy in place that prevents the behaviour from recurring or from escalating.
So we look at the antecedents, we look at the consequences, we look at what happened during the behaviours and we are able to work with the staff to reflect on what might have been able to be done differently so that behaviour didn't happen in that same [way] and it might be that Jake is reacting to cold - like cold is one of the things that Jake definitely reacts to in his environment but there are so many of those and the staff have so many factors to consider when thinking about, for example, taking Jake out into the community. So they have to try to mitigate as much as possible for what potentially could happen and it's impossible to mitigate for absolutely everything because there are unpredictable factors in a community setting. However, they can certainly be prepared for and have thought through what might happen in certain settings and we do that through analysis of incidents. We do that through talking through with the staff about how confident they feel to work with Jake in certain environments.
...But doing reflective practice and practice coaching is a specific skill set and that's the reason I guess that we do it at the moment is Heather is not a registered psychologist and the sorts of things that we discuss in the reflective practice and practice coaching sessions are of course about Jake. But for example, with Heather some of the things that I've spoken to Heather about has been about managing staff who are then working with Jake. So it is about being able to look at the system of support around him.
...it's about capacity building to the point where we're no longer needed, and that's almost a judgment call. It's about consistency of the team, having a stable environment, and also hopefully less and less incidents and behaviours of concern from Jake, and they're the indicators that will tell us things are going well, and we step back and step out. So, it's impossible to know when those things will happen, but with a consistent overlay and approach, we would hope that they would start to happen within at least six months.
Practice coaching is specifically for the staff. It's a form of professional supervision. It enables them time to reflect on their own practice with Jake, their interactions with each other, the struggles that they may or may not have in the workplace, and that does include Heather. So, as I said previously, a lot of the practice work that we do is about Jake and those interactions and the staff, but some of the work, for example, that I have to enlist Heather, has been around management and managing staff, and strategies and techniques for supporting her in that role.
...So, the fact that Ms Castledine has been managing and employing, whilst working, a team of people to support her son, is kind of extraordinary, and you can see that it is taking a toll on her and had taken a toll on her up to now.
...I understand why she's doing it and why she wants to, you know, hold this, but long-term it's not a sustainable model, particularly for her health and wellbeing...
...and therefore, the health and wellbeing of Jake, ultimately.
...I would hope that within another 12 months to two years, that there is a different model of practice in place that relieves Ms Castledine of the burden of being the sole employer, which I think, is just too much. Too much.
As Jake's low level behaviours appear to be returning and he remains at a 2:1 ratio, all staff require a consistent approach and would benefit from reflective practice. Given the disruptions in staffing and lack of consistency, it is recommended that practice coaching continue for at least a 12 month period with a review built in the 12 month mark to evaluate each team member's critical thinking, practice improvements, confidence and their skills, knowledge and performance as disability professionals working with Jake. For weekday staff this would mean weekly practice coaching sessions and for weekend staff access to one session every month.
As a reasonable and necessary support for Jake, it is recommended that Practice Coaching continue on a weekly rather than a fortnightly basis. The costing below is based on a 12 month period and should be calculated on a pro rata basis for the remainder of Jake's current plan.
Weekday Staff
45 minutes per staff member, per week (30 min session - 15 minutes administration)
6 x 48 = 288 Hours + 8 Hours as required for incident response on other weeks = 296 hours
Weekend Staff
45 minutes per staff member, per month (30 min session - 15 minutes administration)
Ms Heather Lambert's evidence - support staff team leader
During this time of restructure, Jake displayed an increasing number of behaviours of concern (see Table 1) with an observed decrease in participation in daily activities. The function of these behaviours was more evident as Jake struggled to absorb new people into his life and work out whom he could trust and how he could engage with these new people. Positive engagement in the program for Jake became increasingly difficult as he navigated new staff. This period of time saw increased property damage, vehicle damage and self-mutilation.
In addition to Janice Castledine's management support, the ongoing reflective practice support from the practice coaches at Guidestar Life has greatly assisted staff in implementing the transitional BSP. During these reflective practice sessions, staff are able to discuss with the practice coach their own reflections of how Jake is doing in the program, the reasons behind his behaviours (both positive and negative), the details of support strategies, and how staff, themselves, are personally feeling while working in the program...
...I think the reflective practice involved in having a weekly session with a practice coach is incredibly useful, for me being able to reflect on how I am best coaching the staff and how I am implementing strategies involved in positive behaviour support and involved in our behaviour support plan. To have someone to discuss those with, someone with a strong background in all of that, to discuss the strategies that I'm helping and supporting staff to implement, as well as just discuss anything that is going on within...the program, whether they're actually working...whether what's been written in the behaviour support plan is actually being implemented effectively. So for me just having that reflective practice time and that discussion to actually think out loud about how everything's going really is incredibly useful, for me personally.
Ms Meg Parsons' evidence - NDIA employee (Director Complex Support Strategy)
Jake's diagnosis (of likely organic brain damage, Autism Spectrum Disorder, ADHD, Bi-Polar and undiagnosed but recognised PTSD) must also be considered when formulating the Positive Behaviour Support plan. The goals and strategies must be realistic and set achievable key performance indicators for Jake that do not increase his anxiety and set him up for failure. The requested 500+ hours of Multi-Disciplinary Support are (in my opinion) likely to overwhelm Jake and, given the referenced amount of time Jake spends in an over aroused state, have little benefit. (Fowler report).
Jake's assessed functional impacts and the lack of recorded outcomes and benefits of previous interventions (particularly positive quality of life outcomes) experienced by Jake bring into question the value of a high volume of therapeutic interventions.
As Ms Castledine is self-managing Jake's NDIS plan and directly employing staff, the expectation is that she has a capability and capacity to fulfil the responsibilities associated with self-management. As an employer, Ms Castledine also has a responsibility to provide regular staff support, training and professional development in accordance with the relevant employment legislation.
This is distinct from the hours allocated to behavioural support planning which is designed to include determining how those funds are used between the various therapists and support workers, after consultation with those professionals. This is indicated by Annexure A. It has never been proposed that the hours for planning would be used for therapeutic interventions.
We're not assessing the complexity of Jake and we've never said we are. We agree he's a very complex young man but what we're looking at is what is the program of supports in its entirety.
I think the key is getting Jake to the point and Jake's support workers to the point and family, understanding what are the key communication mechanisms that he uses so he can communicate what he wants and needs and it's about also getting realistic goals for Jake and really making sure the bar is set at an appropriate level and I'm never one that will say that there is never an opportunity of someone developing skills and capability but it is about setting that at a realistic standard for all of the complexities in their life. I think too it's not just at the moment about Jake's disability, it's also very much about the complexity in the world around him and the multiple workers and the multiple therapists as well and we really have to get that contained and get a nice, controlled, very clear environment and we've heard from many of the therapists and staff that it would be good if we could do that or it would be - we need to do that. Comments like that which indicate that there is a lack of control and if I may use the word, it's quite a chaotic environment. So our intent...is about a line in the sand and getting real clarity. I think one of the beauties about the NDIS is that we get that this year and we get clarity and then we look at it as evidence for the next plan and who knows, the evidence may tell us that there is a good reason to have 200, 300, 1,800 hours but at the moment with what is happening in Jake's life, we're saying this is what we think would get a nice containment and clarity around it.
Draft NDIA Practice Standards about behaviour support plans
As discussed the second document is subject to the undertaking made by the Applicant to not distribute this document as it is DRAFT. We anticipate that a finalised version will be made available to the public in February or March 2018.
Issue #1 - how many hours of therapeutic intervention is reasonable and necessary for Mr Castledine and how should this funding be structured
Development of comprehensive behaviour support plan with goals, strategies, metrics
Analysis and review of implementation of Behaviour Support Plan (BSP) - this includes Functional Behaviour Assessment (FBA) and any required changes (flexibility to use hours as needed)
Reporting required on BSP implementation and outcomes against goals.
COUNSEL FOR NDIA: Okay. I want to ask you some questions about the 80 that you reached, the 80 hours in your report?---M'mm.
When you were coming to prepare your report, were you given some kind of general writing orders or guidance as to the kind of hours that were thought useful in terms of your therapeutic work with Jake?---Yes, in collaboration with Jake, Janice and his team, I had access to the report from Vicki and had a look at what was implemented then, and we had a look at what (indistinct) were necessary and how we can move forward to ensure that, addressing the most important goals for Jake, and there was a collaborative approach to reach those 80 hours.
...
So, accepting that it can be used flexibly, was that kind of time that you felt you should be inputting into your calculation something that you have come up with on the basis of this collaborative discussion with Janice and the workers about what they would find useful?---Including professional opinion and past experience.
As outlined above, Jake's therapy goals remain the same to address his overall NDIS goals.
Within the recommended Occupational Therapy and Speech Therapy hours that were initially recommended, attention to Jake's change in circumstances and potential for increased fatigue is acknowledged and monitored; however it has not required an increase or reduction in the level of support that was initially recommended.
During the time that Jake was an in-patient, therapy sessions ceased; however in the weeks following Jake's discharge, extra time was spent with Jake to assess his functional capacity and to ensure his support needs were being met and all new support team members were trained to work with Jake.
NDIA's evidence in relation to speech and occupational therapy
Issue #2 - how many hours of practice coaching is a reasonable and necessary support for Mr Castledine and how the funding for this support should be structured
Is practice coaching a reasonable and necessary support?
Issue #3 - whether Mr Castledine should receive funding for his travel costs and if so, how that funding should be calculated
Given the NDIS is a statutory scheme, there is utility in considering the provision of travel expenses under similar statutory schemes. Those schemes similarly apply in actuarial approach. The Safety, Rehabilitation and Compensation Act 1988 (Cth) (the Comcare scheme), the Military Rehabilitation and Compensation Act 2004 (Cth) and the Defence Rehabilitation and Compensation Act 1988 (Cth) (the MRCC schemes) - similar insurance schemes - provide a rate of 60c per kilometre for any travel expenses over 50 kilometres. The Veterans' Entitlements Act 1986 (Cth) provides a rate of 35.5c per kilometre for travel expenses.
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[1] Refer to paragraph [32] of Mr Castledine's Statement of Position lodged with the Tribunal on 14 December 2017 (Mr Castledine's SOP).
[2] Refer to paragraph [32] of Mr Castledine's SOP.
[3] The correct version of the First Plan and covering letter from the NDIA dated 5 October 2016 was tendered at the hearing and forms Exhibit "R1". The NDIA informed the Tribunal at the hearing the version of the First Plan appearing at T-Documents T16 was incorrect and should be disregarded. The NDIA subsequently refers to having made a decision on 28 September 2016 (see NDIA letter dated 9 May 2017) and not 5 October 2016. It may be that the delegate's decision was made orally on 28 September 2016 and confirmed in writing by the delegate's letter on 5 October 2016. Nothing turns on this discrepancy about the date of the decision. The Tribunal will refer to this decision as having been made on 28 September 2016.
[11] Refer to paragraph [6] of Mr Castledine's SOP.
[12] Refer to Transcript 18 December 2017 at P-8, lines 25-37.
[13] Refer to Transcript 18 December 2017 at P-9 to P-11.
[14] Refer to email from the NDIS to the Tribunal and Ms Castledine's representatives dated 21 December 2017 attaching covering letter by the NDIA to Mr Castledine dated 18 December 2017 and copy of the Third Plan.
[15] Refer to Transcript 21 February 2018 at P-137.
[17] Refer to Tribunal's Direction made on 22 February 2018.
[18] After the hearing, on 26 February 2018 Mr Castledine's representatives also lodged with the Tribunal travel log book records showing details of travel undertaken on various dates in 2017.
[19] Refer to Transcript 21 February 2018 at P-117.
[20] Refer to page 2 of Ms Cohen's and Ms Greiner's Joint Report.
[21] Refer to paragraph [6] of Mr Castledine's Closing Submissions.
[22] Refer to paragraph [7] of Mr Castledine's Closing Submissions.
[23] Refer to paragraph [44] of Mr Castledine's Closing Submissions.
[24] Refer to paragraph [5] of Mr Castledine's Closing Submissions.
[25] Refer to paragraph [5] of the NDIA's Closing Submissions. This appears to be a reference to Annexure A of the NDIA's SOP which was prepared by Ms Parsons.
[26] It seems the reference to $54,000 was intended to be a reference to $54,469.18 as appearing in the plan. Nothing turns on this minor discrepancy.
[27] Refer to Transcript 20 December 2017 at P-286.
[28] Refer to paragraph [47] of the NDIA's Closing Submissions.
[29] Refer to paragraph [6] of the NDIA's Closing Submissions.
[30] Refer to Transcript 18 December 2017 at P-45.
[32] Refer to paragraph [8] of the NDIA's Closing Submissions.
[33] Refer to Transcript 18 December 2017 at P-45.
[35] The Tribunal also notes it has taken into consideration the observations of Deputy President Forgie in the recent decision of Re Williamson and National Disability Insurance Agency [2019] AATA 2944.
[36] Refer to pages 7 and 8 of the Fifth Plan.
[37] Refer to paragraph [55] and [56] of Mr Castledine's Closing Submissions.
[38] Refer to s 35(1)(a) of the NDIS Act.
[39] Refer to s 35(1)(b) and (c) of the NDIS Act.
[41] Refer to Transcript 20 December 2017 P-238.
[47] Refer to paragraph [6] of Ms Castledine's Statement.
[48] Refer to paragraphs [8] and [9] of Ms Castledine's Statement.
[49] Refer to paragraph [12] of Ms Castledine's Statement.
[50] Refer to paragraph [13] of Ms Castledine's Statement.
[51] Refer to paragraph [14] of Ms Castledine's Statement.
[52] Refer to paragraph [15] of Ms Castledine's Statement.
[53] Refer to Transcript 19 December 2017 at P-119.
[54] Refer to paragraph [17] of Ms Castledine's Statement.
[55] Refer to paragraph [18] and [20] of Ms Castledine's Statement.
[56] Refer to Transcript 20 December 2017 at P-251.
[58] Refer to paragraph [22] of Ms Castledine's Statement.
[59] Refer to paragraph [23] of Ms Castledine's Statement.
[60] Refer to paragraph [27] of Ms Castledine's Statement.
[61] Refer to paragraph [28] of Ms Castledine's Statement.
[62] Refer to paragraph [29] of Ms Castledine's Statement.
[63] Refer to paragraph [32] of Ms Castledine's Statement.
[64] Refer to paragraph [33] of Ms Castledine's Statement.
[65] Refer to paragraph [130] of Ms Castledine's Statement.
[66] Refer to paragraph [41] of Ms Castledine's Statement.
[67] Refer to paragraph [43] of Ms Castledine's Statement.
[68] Refer to paragraph [45] of Ms Castledine's Statement.
[69] Refer to paragraph [46] of Ms Castledine's Statement.
[70] Refer to paragraph [47] of Ms Castledine's Statement.
[71] Refer to paragraph [49] of Ms Castledine's Statement.
[72] Refer to paragraph [50] of Ms Castledine's Statement.
[73] Refer to paragraph [58] of Ms Castledine's Statement.
[74] Refer to paragraph [60] of Ms Castledine's Statement.
[75] Refer to Transcript 19 December 2017 at P-106.
[76] Ibid; Ms Castledine said that the other support workers were paid at the rate of $31 per hour plus superannuation. Scope is paid $47.20 per hour by the NDIA for the provision of its support worker, "Josh", to care for Mr Castledine.
[80] Refer to Transcript 18 December 2017 at P-14.
[81] Refer to T-Documents T12 (2011 report), ST-Documents ST1 (June 2017 report) and Exhibit "A1" or Annexure K (second of two documents) to Mr Castledine's SOP (November 2017 report). The progress report attached to the June 2017 report was missing from the ST-Documents and subsequently tendered by Mr Castledine's representatives as an exhibit at the hearing.
[82] Refer to page 1 of the 2011 report.
[86] Based on an extrapolation from the numbers stated in the 2017 report to a 12-month period.
[88] Refer to Annexure K (Ms Fowler's report dated 22 November 2017) of Mr Castledine's SOP.
[90] Refer to Transcript 18 December 2017, P-13.
[114] Refer to Transcript 21 February 2018 at P-28.
[116] Refer to page 2 of Ms Cohen's report dated 16 November 2017.
[117] Refer to Transcript 21 February 2018 at P-30.
[134] Refer to Transcript 18 December 2017 at P-65.
[140] Refer to report prepared by Ms Russell-Maynard (undated) at T-Documents T13.
[153] Refer to Transcript 21 February 2018 at P-59.
[157] Refer to Exhibit "A9" at page 6.
[166] AHPRA is the Australian Health Practitioner Regulation Agency.
[167] Refer to Transcript 19 December 2017 at P-101.
[188] Refer to Transcript 21 February 2018 at P-16.
[190] Refer to Transcript 19 December 2017 at P-145.
[193] The MANDT System program presents an education and training system of gradual and graded alternatives for de-escalation and supporting people.
[194] Ms Lambert said that TEACH program was the Treatment and Education of Autistic and related Handicapped Children, which involved structured teaching and other structured environments - refer to Transcript 19 December 2017 at P-145.
[200] Refer to Transcript 21 February 2018 at P-90.
[202] Refer to Exhibit "R3". Ms Parson's gave evidence that this latest version of the NDIA Practice Guide was approved on 13 September 2017 but it had been in existence prior to that time - refer to Transcript 21 February 2018 at P-102.
[203] Refer to Ms Parson's Statement at paragraph [20].
[207] Ibid at paragraph [26] and [27]. The Tribunal notes that "restrictive practice" in s 3(1) of the Disability Act 2006 (Vic) is defined as meaning "any practice or intervention that has the effect of restricting the rights or freedom of movement of a person with a disability or of an NDIA participant" and that Part 6B of this Act sets out a number of provisions regulating the use the restrictive practices by registered NDIS providers.
[210] Ibid at paragraph [35] and p 87 of the Guidestar Report.
[221] Refer to Ms Parson's Statement at paragraph [46].
[223] Refer to NDIA's Closing Submissions at paragraph [10].
[224] Refer to paragraph [32(iii)] of the NDIA's Closing Submissions.
[225] Refer to Transcript 21 February 2018 at P-89.
[229] Refer to Annexure A, pages 2 and 3.
[230] Refer to first and second items listed in Annexure A.
[231] Refer to NDIA's Closing Submissions at paragraph [13].
[233] Refer to Transcript 21 February 2018 on P-71.
[234] Refer to paragraph [6] of Mr Castledine's Reply.
[235] Refer to paragraph [7] of Mr Castledine's Reply.
[236] The Tribunal notes that Ms Parsons in her statement inserted a reference to "reflective practice" in the list of matters that she considered was expected from a person, like Ms Castledine, who was self-managing an NDIS plan.
[237] Refer to Transcript 20 December 2017 at P-224 and P-226.
[239] Refer https://www.ato.gov.au/individuals/income-and-deductions/deductions-you-can-claim/vehicle-and-travel-expenses/car-expenses/#centsperkm. This rate is 68 cents per kilometre from 1 July 2018 (or 66 cents per kilometre for the 2017-18 income year).