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[2016] VCAT 2150
Victorian Civil and Administrative Tribunal
2016-12-20
Mr J
Original judgment source is linked above.
Health Practitioner Regulation National Law (Victoria) Act 2009 ss 156, 157 and 202; condition imposed by Medical Board of Australia on practitioner's registration as a form of immediate action; whether sufficient evidence before Board to form a reasonable belief that practitioner posed a serious risk to persons and that it was necessary to take immediate action to protect public health or safety; s 156 criteria not satisfied; Decision of Board set aside.
Syme v Medical Board of Australia (Review and Regulation) [2016] VCAT 2150
The Tribunal acknowledges that prior to giving evidence, Dr Syme claimed that during the course of his evidence, the production of certain documents and answers to certain questions might tend to incriminate him. Accordingly, pursuant to ss 105(2) of the Victorian Civil and Administrative Tribunal Act 1998 any such answer or document is not admissible in evidence in any criminal proceedings, other than in proceedings in respect of the falsity of the answer.
Dr Rodney Syme [MED0000944514] is not to engage in the provision of any form of medical care, or any professional conduct in his capacity as a medical practitioner that has the primary purpose of ending a person's life.
Dr Rodney Syme [MED0000944514] is not to engage in the provision of any form of medical care, or any professional conduct in his capacity as a medical practitioner that has the primary purpose of ending a person's life.
The Board is proposing to take this action because it reasonably believes that because of your alleged conduct, you pose a serious risk to persons and it is necessary to take immediate action to protect public health or safety for the following reasons:
I certainly am not at any risk from Dr Syme - in fact, quite the contrary.
It is not open to the Board to form a reasonable belief that Dr Syme, practising in the limited and carefully managed way in which he does, poses a serious risk either to Mr Erica or any other person.
On the basis of the evidence before it, the Board reasonably believes that because of his conduct, Dr Syme poses a serious risk to persons and it is necessary to take immediate action to protect public health or safety for the following reasons:
More particularly, The Board formed the belief that providing Nembutal to a patient (in the circumstances Dr Syme described to the Board) has the primary purpose of enabling the patient to use the Nembutal to end their life (irrespective of whether the patient subsequently chooses to take the Nembutal).
My quality of life has plummeted since you have imposed those restrictions on Dr Syme.
immediate action, in relation to a registered health practitioner or student, means -
(a) the suspension, or imposition of a condition on, the health practitioner's or student's registration; or
(1) A National Board may take immediate action in relation to a registered health practitioner or student registered by the Board if -
(i) because of the registered health practitioner's conduct, performance or health, the practitioner poses a serious risk to persons; and
(ii) it is necessary to take immediate action to protect public health or safety;
(2) However, the National Board may take immediate action that consists of suspending, or imposing a condition on, the health practitioner's or student's registration only if the Board has complied with section 157.
To provide for the protection of the public by ensuring that only health practitioners who are suitably trained and qualified to practise in a competent and ethical manner are registered.
Restrictions on the practice of a health profession are to be imposed under the scheme only if it is necessary to ensure health services are provided safely and are of an appropriate quality.
(1) After hearing the matter, the responsible tribunal may -
(c) substitute another decision for the appellable decision.
(2) In substituting another decision for the appellable decision, the responsible tribunal has the same powers as the entity that made the appellable decision.
[20]...I am not of the view that it is necessary to be satisfied that certain conduct will be engaged in by a registered health practitioner before the reasonable belief can be held that the practitioner poses a risk to persons. In my view, it is not even necessary to be satisfied that it is more probable than not that the practitioner will engage in some conduct in the future. In my view, a reasonable belief may be held that a practitioner poses a serious risk to persons if, based upon evidence of past conduct, there is a real possibility that the practitioner will engage in conduct which could be harmful to persons. If the possibility of engaging in the conduct was so remote as to be fanciful, or the possible harm trivial, then I would not think that a belief could reasonably be held that the practitioner posed a serious risk to persons.[emphasis added]
The notifier is the patient's usual treating general practitioner.
The notifier is concerned the patient, who suffers from end stage squamous cell carcinoma of the tongue with lung metastases has disclosed that Dr Syme is to assist the patient end his life.
The patient is an ex-CEO and has undergone psychiatric assessments and GP thinks he is of sound mind.
The doctor-patient relationship has existed for a period of 20 years.
The patient suffers from squamous cell carcinoma of the tongue with lung metastases and is currently receiving palliative/end of life care (natural death expected to occur within one month).
The notifier is concerned about information provided to him by the patient in relation to Dr Syme providing assistance to end the patient's life.
The notifier is unaware of how or when this event is planned to occur.
Mr Erica told him that he wanted information/assistance to end his life. Notifier told him that he could not help him but could provide palliative care. Mr Erica later told him that he had approached Dr Syme in his capacity as an advocate for voluntary euthanasia to ask how he might go about ending his life.
Notifier informed that "they are talking about Nembutal" but he does not have any details of how exactly Mr Erica intends to take his life, when he plans on doing this or what role Dr Syme has or will play.
Mr Erica told Notifier that he had also contacted ABC Television and is currently in the process of making a documentary for Australian Story. Notifier spoke to Mr Erica yesterday and understands that filming for this documentary is currently ongoing...
He continues to provide medical care (including palliative care) to Mr Erica. As far as he is aware, Dr Syme is not directly providing any medical care to Mr Erica.
Applicant's submission to IAC dated 2 February 2016
... Many patients do not receive the support they seek from their doctors because of concerns about whether the support can properly be given. In being open about the advice and support he offers to patients, Dr Syme hopes to improve both the circumstances in which the terminally ill can be cared for and the context in which medical practitioners are called upon to provide that care.[26]
It is widely accepted in palliative medicine that, consistent with this clause, doses of medicine may be given to patients to relieve their pain and suffering even though it is foreseeable and indeed inevitable that those doses will also have the effect of hastening the patient's death. The use of morphine and sedatives for this purpose is widely accepted and meets the needs of many patients. However, not all patients wish to receive that form of palliative care because of the loss of dignity, control and comfort which can be associated with it.
Dr Syme's practice is a form of palliative care that is directed to the palliation of the psychological and emotional suffering experienced by some patients in the end stages of terminal disease. In particular, a sense of having control over the end of one's life is one of the most powerful tools for the relief of that psychological and existential suffering.
Dr Syme's practice therefore is directed to providing support, including information and advice, which gives that sense of control to patients. It should be noted that that support frequently results in patients being reassured that their needs will be met by traditional palliative care.
Mr Erica sought that control so that he could spend his final weeks in a calm and peaceful manner without fear and distress about the future.
The provision of advice and assistance which has the sole intention of relieving psychological suffering is properly to be seen as a legitimate form of palliative care. Dr Syme does not intend Mr Erica to end his life though he recognises that there are circumstances in which Mr Erica might choose to do so. His care of Mr Erica is directed not to the ending of Mr Erica's life but to the improvement of the quality of Mr Erica's life.
Dr Syme's practice is limited to advising and assisting patients who are in the final stages of terminal illness and to whom a sense of control over their dying is important. His patients seek him out. He does not advertise for patients. He therefore has contact only with those patients who self-identify as being part of a cohort for whom traditional palliative care options may not be acceptable. Having been contacted by them, he assists only those whom he is satisfied are in a sound state of mind and whose death from their disease is inevitable or whose disease has progressed to the extent that their lives have become intolerable to them.[29]
It is not open to the Board to form a reasonable belief that Dr Syme, practising in the limited and carefully managed way in which he does, poses a serious threat either to Mr Erica or to any other person.
Dr Syme's position and practice in relation to the rights and needs of terminally ill patients is a matter of public record. His work has been brought to the Board's attention on at least two previous occasions. On those two occasions, despite the availability of considerably more information than is available here, the IAC was never convened and the Board ultimately determined that no action of any kind was required.
The present notification does not give rise to the need for any immediate action.
While the range of people seeking assistance is very broad, the number of people to whom I give actual assistance (medication, including amylobarbital, Nembutal and opioids) is very small, largely confined to those with cancer in the terminal phase and those with the severe neurological illness, particularly in motor neurone disease. I have provided medication to around 10% of the approximately 1700 patients whom I have counselled.[35]
... extra ordinary and often unrecognised psychological distress, extreme anxiety, fear, even terror as to what is going to happen to them.
Commonly there is what I call "existential suffering" and this involves all sorts of losses relating to quality of life, the sense of being a burden, the sense of not having control, the sense of having no purpose in life, loss of social contact and intimacy. All of these phenomena are existential losses, relating to the circumstances that these people find themselves in...
... You can, I think, influence the psychological suffering quite significantly by engaging with the person, showing empathy and compassion with their problems, listening to them, talking to them and ultimately if you see that they are on a significantly progressive downward path, giving them medication will have a profound psychological impact, a positive impact.
Giving them control alters their psychological thinking entirely, and it can have a profound effect on physical symptoms as well. All the physical symptoms we actually have are experienced in the mind. And if we change the way a person is thinking, you can often diminish a lot of physical symptoms. You cannot change weight loss or weakness but you can influence pain, you can influence breathing, you can in fact psychologically induce more energy in a person.
I usually do not provide medication straightaway, even to those whom I think may ultimately want the opportunity to have and use it. Rather, I, in appropriate cases, give an undertaking to a person that at an appropriate time I will give it to them.
The promise of medication has an effect, provided they believe you. One of the standard responses of doctors to patients who worry about their future is "do not worry, we will not let you suffer" which nine times out of 10 is a promise that is not kept... The promise of assistance, unless it is firmly believed, is of little value.
If it is believed, it can be of value. If at the time you first see them and talk with them they clearly show that they want control, but they are not actually at a point where they might be going to exercise or use that control, then supporting them, maintaining a dialogue, giving them a promise of support, is often all they need to palliate their suffering. They do not need medication at that point.
Later, as their disease or symptoms progress, the time comes when only actually having the medication in their possession gives the sense of control that is needed to palliate their psychological suffering. Palliative care recognises what is called a "total pain syndrome", that is the term they use and it encompasses not only physical but psychological, and they call it "spiritual pain", but I use the term existential, but it is the broader aspect of total suffering. It is a matter of judgement as to when is the correct time as to when to provide it. I do not think you get the benefit from providing it if you leave it until the very last minute. Notwithstanding my usual approach referred to earlier, there is a small number of persons in the terminal stage of a terminal illness whose suffering is refractory, and so severe that I provide the Nembutal at the first consultation, because there is no time for further dialogue. Prior to doing so, I make appropriate and relevant inquiries regarding the patient's medical status. The emphasis is on the necessity to relieve intolerable suffering-either by terminal sedation in palliative care (which they emphatically reject) or by taking control of the end of their own lives with Nembutal.
I want to provide these people with the psychological benefit of control. I want to diminish or eliminate the psychological distress which they have, which then improves the quality of life. They feel, "I am in control now". And that is what I think, they should be in control of their death, make their own decisions, not the doctor.
If you give a person Nembutal, a drug which can end their life, then of course they might use it and I can foresee of course that they might do that.
When I first started doing this, I did feel my intention was to allow a person to end their life. But as time has gone on, I have recognised very, very strongly the palliative value in having the medication without using it. It first became apparent to me with a woman who had a brain tumour, whom I gave medication to and she survived for another three or four years. I was in constant contact with her during that time and eventually she did not use it and died naturally.
It made me realise that having the medication in her possession had just had a powerful value to her, increasing her quality of life. That was self-evident. Although she wanted that control and it gave her that control, it did not mean that she ended her life at that point. It just strengthened my experience in that most people would hang on to life as long as they possibly can, they will not use this medication without deep consideration. And ultimately she did not use it, which made me realise again that giving a person medication was not done by me because I wanted or intended them to use it.
I can say that categorically, that my intention is to give a sense of control and by so doing to ease their suffering. It may also be the case that yes, the person could use this drug to end their life, but by the time I make the assessment that they need to have possession of the medication I am confident that they will not do that unless they feel it absolutely necessary to use it.
To me, I see quite a direct analogy with palliative care, which treats people in similar circumstances to those people to whom I provide medication. They provide medication by subcutaneous injection, which has the effect of relieving the suffering by putting a person into a coma, slowly, but they stay in the coma until they die. They argue that it is okay because they say it is not their intention to hasten death, but it does hasten death, and arguably more or less in some cases.
I apply the same argument to what I do, in that I give people medication which they may take orally, not by injection. They may take it orally. They can control the process, not the doctors controlling the terminal sedation process. And in both instances, the argument that the intention is to relieve the suffering applies, in both instances one can foresee that the provision of that treatment may hasten death, so there is a very strong parallel between the two.
Many of these patients will find that with support through the medication being in their possession, they can go on with their lives and die naturally, with traditional palliative care or other treatment being sufficient for them.
Although I have not kept statistics, I believe that about 10 to 15% of the people to whom I give Nembutal do not use it and I ask them to give it back to me, because although it has no intrinsic monetary value, for other people it has extraordinary value for people who may need it.
I determined after considering his history, general appearance and my experience, that this was a man who would benefit from having a commitment from me to providing him with support including a commitment to provide him with Nembutal in the event that it became necessary. I did not accept that he needed it at that particular moment. It was the first time I met him, that I was committing to support him, and as I have found with others, I believe that had a beneficial effect on him. I observed that he was very relieved to have the support that he believed was in his best interests.[44]
I reaffirmed my support to him, by which I mean I gave him an undertaking that I would provide him with Nembutal, at the appropriate time. I gave that undertaking to improve his quality of life. I believe I did improve his quality of life:
He told me he was very angry with his general practitioner, who had reported me to AHPRA.
One of the things that often happens as a result of giving a person support is that, by changing their psychological state, you can actually give them purpose for continuing to live. If you have no purpose in life, you go downhill very quickly. If you have a purpose, you keep driving on. I think it has had an existential benefit for Bernard.[47]
In my experience there are two likely outcomes if you contact the treating doctor or if the patient themselves tells their doctor that they have contacted me:
It is very problematic, because involving the treating doctor may have an adverse effect on the patient and how they are treated by their treating doctor. Also, when you put yourself in the treating doctor's position, if I approached them and say this is what is taking place, they are in a way becoming complicit in the process - a process which the vast majority of doctors would think is a murky area. The law is not transparent in these matters, the law gives no protection to doctors. I am confident for myself that what I am doing is legal but I do not think I have the right to force other doctors to hold the same view.
As I have said, I do always take steps to ensure I have information about a person's treatment and prognosis.
The condition... has caused a lot of uncertainty for me about the limits on what I can do for those who contact me for assistance or advice.... I am very clear in my own mind that what I do, including the provision of medication in some cases, is done for the purpose and with the intention of palliating suffering and improving quality of life. So on that basis the condition does not affect what I do because I do not have the primary purpose of ending a life. But at the same time I am aware the Board imposed a condition because it has a different view of what I do and of my purpose.
A really large number of people I do see and talk with, I just talk with once, maybe twice, and I do not provide them with any other assistance at all... I think that just talking has an enormous benefit for them. The condition does not prevent me from having those discussions. However, I think that part of the value of the conversations I have is that people know that, in certain circumstances, I can do more than talk. If it was known that I could not provide assistance beyond talking it would certainly diminish the value of the conversations for those people.[49]
In addition I have severe suffering both physical and psychological.
My physical suffering is (1) pain in the throat, which is constant and aggravated by every swallow. I have recently had an anaesthetic procedure in an attempt to minimise this; (2) severe loss of appetite and weight and debilitating weakness; (3) increasing breathlessness on exertion.
My psychological suffering relates to my extreme loss of control over my own destiny and my fear of extreme suffering and loss of choice as my disease progresses. I want to die at home surrounded by family and friends. I do not want to be hospitalised under palliative care and die by slow sedation and dehydration.
The suffering I endure relates to the loss of independence, control and purpose in my life.
This suffering lead me to try and source Nembutal from abroad which resulted in extreme stress level and loss of over US$2000.
I saw Dr Syme on Q&A and immediately contacted him. After a prolonged phone conversation, he agreed to see me and we met on 13/11/15. He spent over an hour exploring my history and my values. He agreed to support me and advise me and committed to ensuring that I had control over the end of my life, if or when, my circumstances deteriorated to an intolerable level.
We have remained in close contact since then. The effect of his support and advice has been extremely valuable. None of the other doctors who have attended me have provided such benefit and peace of mind. My psychological suffering has diminished to a large degree. I am calm and accepting of the reality of my situation. Dr Syme's care has had a profound palliative effect.
I agreed to become involved in Australian Story in order to increase the understanding in the community of the issues involved, with the ultimate objective to allow the community to have the choice of voluntary Euthanasia.
This involvement has had significant value in providing a sense of purpose to whatever time I have left.
I certainly am not at any risk from Dr Syme - in fact quite the contrary. I do anticipate that the need to end my life because of extreme suffering may occur, and if it does, I will regard that as a peaceful way to end my life. If I make that decision, it will be after careful and prolonged thought and in a rational state of mind.
I hold Dr Syme in the highest regard and I am saddened that his assistance to me has brought him into conflict with the Medical Board. I cannot understand how the traditional palliative care must be an obligatory treatment for all dying persons, this is contrary to my belief.
I wish to have control over the end of my life and the ability to end it with dignity and security when I can no longer tolerate my end-of-life symptoms and suffering. My quality of life has plummeted since you have imposed those restrictions upon Dr Syme.
I have enquired of my GP... what palliative care he can provide. He has informed me that he will provide palliative care to me in my home when required with MS Contin, Maxolon for nausea and vomiting and the maximum strength of Ordine. He indicated that I could determine the dose of the Ordine necessary to relieve my pain. My interpretation is that [my GP] is committing, under the umbrella of palliative care, to provide me with sufficient oral medication to end my life but with no advice as to how to proceed, leaving me to contemplate such an end in an uncertain, haphazard manner without any security as to the outcome. This gives me no comfort whatsoever.
At the present time, I am extremely fortunate that recent treatment - targeted radiofrequency has diminished my throat pain.
However, I am suffering from a number of symptoms which are either un palliatible or currently resisting palliation. These include:
(a) physical weakness;
(b) severe loss of appetite and loss of weight;
(c) restless heavy legs;
(d) Sleeplessness - medication for such leaves me 'dopey' during the day;
(e) loss of quality of life and of purpose in life;
(f) fear and anxiety about my future;
(g) extreme fatigue after walking 100 m
These symptoms are certain to continue and increase, unpalliated, until my death. They will not be palliated by the medication provided by [my GP] which is for the management of pain. These symptoms will only be relieved if I take a massive overdose of the pain medication provided by [my GP] and this option is entirely unpredictable.
Alternatively, I understand that I could opt for institutional palliative care, where I would be provided with slow terminal sedation with the potential for hastening my death.
How can either [my GP's] palliative care or the institutional palliative care be considered not to have an outcome of ending a person's life and how is a determination made that this is not the primary purpose of the treatment?
How is the palliative care better than the option proposed by Dr Syme and which you are preventing?
I decided to contact Dr Syme after I made two attempts to access Nembutal from overseas, which failed due to it being a scam. I saw Dr Syme on the ABC program Q&A speaking about euthanasia, so that's what made me decide to contact him.
I contacted him because I hoped he would be able to give me advice on where I could source Nembutal to give me peace of mind.
I just want to have complete control over decision making about the future course of my life and the treatment I receive, and certainly don't want to rely on any palliative care or nursing home.
This is important because I am in control and will not be leaving it up to someone in palliative care who does not really understand my pain level or psychological state of mind.
If my views and wishes were not given effect I would be very disgruntled and extremely stressed.
To date, Dr Syme has provided me with palliative care in terms of verbal counselling. It is far better than that I have received from either psychological advice or from Peter Mac or my local GP. It means that I am in total control. It gave me peace of mind.
There is no comparison whatsoever to the way in which other doctors responded when I raised the question of control over the ending of my life, because both the GP and oncologist just completely avoided the question due to fear of reprisals in the form of losing their license.
As a result of the advice and assistance Dr Syme gave me I became far more relaxed knowing that I would have Nembutal if he were able to supply it to me. It gave me more energy knowing that I am not stressed out by trying to source Nembutal from overseas. Feeling better psychologically has also made me feel better physically.
At the time of the conditions being placed on Dr Syme's registration, I once again became worried about losing control and knowing that I would have to attempt to source Nembutal overseas with the knowledge that it is illegal and could result in heavy fines or a jail sentence. It meant I may have to resort to some other, ugly form of suicide as I refuse to go into palliative care.
They used to be commonly prescribed for sedation and anxiety, but proved to have addictive properties, and because of associated respiratory depression were regarded as dangerous for any persons with respiratory difficulty, as well as proving sufficient, in a high dose, to cause death (from sedation and respiratory depression) by suicide.
Either phenobarbital 10g in a solution, or pentobarbital 9g in capsules are the common medications administered for the purpose of physician assisted suicide (PAD) in those countries where PAD has been introduced. These medications do not appear in the list of approved drugs in Australia (but, I understand, are available in veterinary practice) and are available for human use only from overseas (if not intercepted by Customs as illegal imports).[54]
Their prime use is for relief of severe pain, and the dose cannot be anticipated, since, over time either the pain caused may change, tolerance to the drug may increase (requiring higher dosages), or side-effects emerge to cause difficulty and require change to another opioid.
Opioids are not a satisfactory drug class for PAD or suicide because of the wide variation in their effect in one individual. In a naive subject, one who has not taken opioids previously, a single high dose might cause death, but in a person already tolerant, after receiving regular opioids, it is quite difficult to predict what the outcome of ingesting quite a high dose might be.
Opioids have multiple effects. They are used primarily for the relief of pain, but have also been used in the past for relief of diarrhoea. They have many side-effects, including constipation, nausea, confusion and hallucinations and itch. [56]
There is no approved use of barbiturates within generally accepted professional standards.[57]
There is no opportunity, as far as I am aware, for barbiturate drugs to be prepared outside of the pharmaceutical industry. They are available only illegally and from overseas.[58]
The prime purpose for obtaining them, therefore, will be for the purpose of suicide, or to give a patient the confidence that he or she can arrange to die by their own hand at a time of their choosing... It may be argued that obtaining a 9g dose of Nembutal has the purpose of building an enhanced sense of 'control' for the patient. It will seek to provide an assurance that the drug may be taken at any future time, but possibly never used, and is therefore not providing the drug to cause death. However, there is no other purpose for ingesting the drug and whenever taken, it will cause death.
The primary purpose of opioids is quite different, the relief of severe pain, and not to cause death.[59]
Suffering is multifactorial in its origins. In either physical, mental or psychological areas it is notoriously difficult to assess, being closely part of an individual's perceptions of their own experience in life with regard to comfort/discomfort, function/dysfunction, support/isolation and meaning/demoralisation.
I have no doubt that psychological suffering can be so distressing to an individual that he or she will wish to access PAD and have recourse to barbiturates with as much personal urgency as will be experienced by an individual in unrelieved pain. Some persons so affected may seek from suicide the relief that they anticipate. But in either instance, (psychological suffering or severe unrelieved pain), there is a need for careful exploration of the situation and consideration of what might be done to relieve distress in other ways.[60]
The reason for taking one of the aforementioned drugs will be to bring about the particular 'harm' of death. That death may be regarded by the patient, however, as a 'benefit'. Death is commonly regarded as an ultimate harm, even though inevitable for all of us, and yet a 'good death' (as intended by Palliative Care support) often has proved a great comfort, whether in anticipation for a patient or in retrospect for an attending family.
Barbiturates will be able to cause that harm/benefit of death in any instance if given in sufficient dose.
Opioids are a quite different category. They have a number of undesirable potential side effects - nausea, constipation, confusion, itchiness - all minor types of 'harm', but as mentioned above, opioids are relatively poor vehicles for causing the particular 'harm' of death.[61]
The prescription of deep sedation for severe patient discomfort when it seems the only possible strategy to bring acceptable relief is an accepted approach in Palliative Care and not requiring justification. The term 'double effect' is commonly invoked to describe the distinction between an intended death, which is euthanasia, versus a death that is merely foreseen as a consequent side-effect. Palliative care physicians have needed the protection of legislation that allows them to prescribe medication in doses necessary to relieve suffering, with the assurance that even if the medication is regarded as likely to hasten death (for example through causing diminished consciousness, inability to take nutrition, or respiratory depression) no criminal prosecution will be incurred.
It is a circumstance that raises considerations of both intention and agency and in ethical discussion, argument can become quite complex. The physician is the agent in causing death, by administering medication, but the prime intention is relief of suffering.
In this regard, the provision of continuous analgesia and sedation by subcutaneous infusion for relief of severe pain that is commonly offered in terminal care does not, in my view constitute 'slow stream euthanasia' as is sometimes implied. Managed with care, while ensuring comfort, it can allow continuing sufficient alertness to be accepted as a dignified and satisfactory time of continuing life, and may well lengthen that life's days.[62]
The difficulty for a satisfactory reconciliation of the two statements, is that while some suffering may be relieved simply by the assurance of having the Nembutal at hand, at the time when it is taken it will surely cause death. The paradox is similar to the international need to have a nuclear arsenal so that nuclear weapons will never be used, and raises complex arguments.[64]
If a medical practitioner acts in accordance with good medical practice, the following forms of management at the end of life do not constitute euthanasia or physician assisted suicide:
The administration of treatment or other action intended to relieve symptoms which may have a secondary consequence of hastening death.
Any potential conflict in clinical practice is best resolved through the open and honest communication with the patient (if possible), colleagues and family, following underlying principles of patient centred care, relationship and respect. Clandestine actions are to be avoided and intentions and agency made clear. A physician who has enjoyed a long professional relationship with the patient may feel too closely involved, and, may suggest involving another professional colleague to review the issues in conflict.[67]
All patients have a right to receive relief from pain and suffering, even where that may shorten their life.
The AMA recognises that there are divergent views regarding euthanasia and physician -assisted suicide.
The AMA believes that medical practitioners should not be involved in interventions that have as their primary intention the ending of a person's life. This does not include the discontinuation of futile treatment.
If a medical practitioner acts in accordance with good medical practice, the following forms of management at the end of life do not constitute euthanasia or physician assisted suicide:
Mr Erica held strong views about managing his suffering from terminal cancer and he wanted control over the end of his life. He wanted the availability of Nembutal, and he had tried to obtain it - this occurred before he approached and consulted with Dr Syme. It is clear that Dr Syme did not introduce the idea of Nembutal to Mr Erica, nor did he make Nembutal available to him.
Dr Syme demonstrated that he understood the nature of Mr Erica's suffering and his values. Dr Syme offered meaningful reassurance and support that relieved Mr Erica's psychological and emotional distress and improved his quality of life.
The evidence indicates that Dr Syme's primary purpose was the palliation of suffering, not the 'ending of a person's life'. His care was beneficial to Mr Erica rather than a risk to his well-being.
It is a challenge for doctors to satisfy the wishes and interests of such patients and it appears Dr Syme was able to provide individualised care that was humane and effective.[70]
Dr Syme effectively addressed Mr Erica's suffering and made him feel better... Mr Erica lucidly stated that Dr Syme achieved better palliation of his suffering than other practitioners and expressed his gratitude for Dr Syme's care. He also stated in his letter to the Medical Board 'my quality of life has plummeted since you have imposed those restrictions on Dr Syme'.
I believe the current Medical Board did not properly acknowledge Mr Erica's psychological and emotional suffering and its successful palliation by Dr Syme. I suggest Dr Syme would provide benefit to similar types of patients.
In my practice of palliative medicine, I have cared for many hundreds of patients like Mr Erica who are fiercely independent and strong minded when confronting the reality of their illness and who want control over the ending of their life. Surveys show that 5 to 10% of terminal cancer patients request help to hasten their death.
Mr Erica wanted to have Nembutal available to use if his suffering became too much; 'a peaceful way to end my life... with dignity and security'.
Mr Erica rejected the option of palliative sedation ... [in which]... death is hastened, but sometimes it can take weeks for the person to die.
Mr Erica also rejected the idea of overdosing on morphine because of an uncertain outcome...
From my experience, Mr Erica was correct to believe that an overdose of morphine may not produce his desired outcome of a quick death and he could survive to be in a worse situation, perhaps involving resuscitation attempts, anoxic brain damage and ongoing hospitalisation.
The intention of the clinician is inherently subjective, but to some extent it can be inferred from the nature of the doctor-patient relationship. If his primary purpose was to end Mr Erica's life, commonly called murder, Dr Syme would not have demonstrated:
It is reasonable to assume that Dr Syme's focus on these aspects of care indicates his 'primary purpose' was to palliate Mr Erica suffering and improve his well-being (which he achieved). By contrast, I think there was little to suggest that Dr Syme had, as the Medical Board put it, 'the primary purpose of ending a person's life'.
Dr Syme's counselling of Mr Erica involved tangible sympathy for Mr Erica's determination to acquire Nembutal. An outright rejection of Mr Erica's wish would have undermined the building of rapport and support.
Dr Syme made two statements about Nembutal that may seem contradictory:
I think the statements can be reconciled, however, using the 'principle of double effect'. This construct is used in clinical ethics and law to justify the widespread practice of palliative sedation. The clinicians' primary intention is to palliate suffering and the hastened death of the patient is regarded as a secondary (unintended) consequence.
The double effect construct is also applied to the withdrawal of life sustaining treatments: the primary intention is to cease the treatment that is no longer beneficial to the patient and the foreseen death is regarded as unintended.
Similarly, Dr Syme would say he could help Mr Erica obtain Nembutal with the primary intention to relieve his psychological and emotional suffering to improve his sense of control over the end of his life and to avoid Mr Erica otherwise embarking on a worse course of action in a distressed state (e.g. toward a premature or violent death).
Hypothetically, even if Dr Syme made Nembutal available, it does not necessarily mean he intends for Mr Erica to actually take it. Indeed, Dr Syme stated it was not his intention 'that the patient actually take the medication' - he may really hope that Mr Erica chooses not to take it. It is noteworthy that in Oregon, where physician assisted dying has been legally practised since 1998, about 40% of patients provided with a legal prescription do not go on to take the drug.
If Mr Erica took Nembutal when he was at the end of his endurance of intolerable suffering, then the application of 'double effect' would regard his death as a secondary (unintended) consequence of the primary (intended) purpose to palliate suffering, in much the same way as clinicians justify the hastening of death with palliative sedation.
Terminal care is often provided by a multidisciplinary team to address the multidimensional nature of suffering and by practitioners across hospital and community settings. However, some patients develop a close therapeutic relationship with an individual practitioner and do not want others involved in the care. Dr Syme has made something of a specialty of caring and advocating for those patients who want control over the end of their life, whom other practitioners find very challenging and difficult to help.
Intention v Purpose and relevance to identifying the conduct
Persons possibly at risk from Dr Syme's conduct
[1] Tab 1 to s 49 Statement filed by the Respondent.
[3] Tab 7 s 49 Statement: file note dated 27 January 2016 of telephone conversation between notifier and Board staff member.
[4] Tab 8 s 49 Statement: file note dated 28 January 2016 of telephone conversation between notifier and Board staff member.
[5] Tab 4 s 49 Statement: letter dated 28 January 2016.
[6] Tab 11 s 49 statement: statement of Bernard Erica to the Board dated 30 January 2016.
[7] Tab 13 s 49 statement: written submissions of Dr Syme to Immediate Action Committee dated 2 February 2016.
[9] Tab 3 s 49 statement: letter dated 5 February 2016 from the Board to Dr Syme's solicitors.
[10] Tab 16 s 49 statement: letter dated 16 February 2016 from the Board to Dr Syme's solicitors.
[11] Tab 3 s 49 statement: statement dated 4 March 2016 from Mr Erica to the Chairman Immediate Action Committee.
[12] Current version no. 5 incorporating amendments as at 17 September 2014.
[22] [2013] QCAT 614 at [8]. This approach has been adopted and endorsed in Ord v Nursing & Midwifery Board of Australia [2014] QCAT 68 at [8]; Chaudry v Medical Board of Australia (no.2) [2014] QCAT 288 at [16] and in MLNO v MBA [2012] VCAT 1613.
[23] [2014] QCAT 701 at [20].
[24] Statement dated 28 April 2016 [1]-[2], TB 54; and oral evidence.
[25] Statement 2 February 2016 [5], TB 42.
[42] Statement [49]-[56], TB 61-62.
[52] Statement of Bernard Erica dated 30 January 2016, TB 70.
[53] Statement of Bernard Erica dated 4 March 2016, TB 72-73.
[54] Expert Report dated 13 May 2016, [18], TB 89.
[55] Supplementary Expert Report dated 22 May 2016, TB 97.
[62] Prof Maddocks statement [22], TB 93.
[76] Pharmacy Board of Australia v Kozanoglu [2012] VSCA 295; (2012) 36 VR 656 at [106].
[81] See also Ex B, Age newspaper article 11 May 2015, giving an account by patient Ray Godbold.
[83] Both Prof Maddocks and Dr Hunt acknowledged that death in these circumstances is seen by both patient and family as beneficial or desirable as the intended purpose of easing pain.
[84] Counsel's written submission [35]-[43] dated 23 November 2016.
Syme
Medical Board of Australia
(2012) 36 VR 656