austlii:cth/ARTA/2025/373
General information, not legal advice.
ARTA
2025-04-02
Original judgment source is linked above.
(1) A person meets the disability requirements if:
(a) the person has a disability that is attributable to one or more intellectual, cognitive, neurological, sensory or physical impairments or the person has one or more impairments to which a psychosocial disability is attributable; and
(b) the impairment or impairments are, or are likely to be, permanent; and
(c) the impairment or impairments result in substantially reduced functional capacity to undertake one or more of the following activities:
(i) communication;
(ii) social interaction;
(iii) learning;
(iv) mobility;
(v) self‑care;
(vi) self‑management; and
(d) the impairment or impairments affect the person's capacity for social or economic participation; and
(e) the person is likely to require support under the National Disability Insurance Scheme for the person's lifetime.
(2) For the purposes of subsection (1), an impairment or impairments that vary in intensity may be permanent, and the person is likely to require support under the National Disability Insurance Scheme for the person's lifetime, despite the variation.
(3) For the purposes of subsection (1), an impairment or impairments that are episodic or fluctuating may be taken to be permanent, and the person may be taken to be likely to require support under the National Disability Insurance Scheme for the person's lifetime, despite the episodic or fluctuating nature of the impairments.
(1) A person meets the early intervention requirements if:
(i) has one or more identified intellectual, cognitive, neurological, sensory or physical impairments that are, or are likely to be, permanent; or
(ii) (has one or more identified impairments to which a psychosocial disability is attributable and that are, or are likely to be, permanent; or
(iii) is a child who has developmental delay; and
(b) the CEO is satisfied that provision of early intervention supports for the person is likely to benefit the person by reducing the person's future needs for supports in relation to disability; and
(c) the CEO is satisfied that provision of early intervention supports for the person is likely to benefit the person by:
(i) (mitigating or alleviating the impact of the person's impairment upon the functional capacity of the person to undertake communication, social interaction, learning, mobility, self‑care or self‑management; or
(ii) preventing the deterioration of such functional capacity; or
(iv) strengthening the sustainability of informal supports available to the person, including through building the capacity of the person's carer.
Note: In certain circumstances, a person with a degenerative condition could meet the early intervention requirements and therefore become a participant.
(1A) For the purposes of subparagraph (1)(a)(i) or (ii), an impairment or impairments that are episodic or fluctuating may be taken to be permanent despite the episodic or fluctuating nature of the impairments.
(2) The CEO is taken to be satisfied as mentioned in paragraphs (1)(b) and (c) if one or more of the person's impairments are prescribed by the National Disability Insurance Scheme rules for the purposes of this subsection.
(3) Despite subsections (1) and (2), the person does not meet the early intervention requirements if the CEO is satisfied that early intervention support for the person is not most appropriately funded or provided through the National Disability Insurance Scheme, and is more appropriately funded or provided through other general systems of service delivery or support services offered by a person, agency or body, or through systems of service delivery or support services offered:
(a) as part of a universal service obligation; or
(b) in accordance with reasonable adjustments required under a law dealing with discrimination on the basis of disability.
Does Ms Harding meet the disability requirements?
'What the legislative scheme focuses on is not the name of a person's disability, nor the diagnosis given to a person - but rather what are the impairments experienced by the person which may require supports so that the person can participate in all aspects of personal and community life. It is the impairment which the scheme contemplates may affect the "functional capacity" of a person'.[11]
Does Ms Harding have a disability attributable to an impairment?
Are Ms Harding's impairments, or are they likely to be, permanent?
5.4 An impairment is, or is likely to be, permanent only if there are no known, available and appropriate evidence-based clinical, medical or other treatments that would be likely to remedy the impairment.
5.5 An impairment may be permanent notwithstanding that the severity of its impact on the functional capacity of the person may fluctuate or there are prospects that the severity of the impact of the impairment on the person's functional capacity, including their psychosocial functioning, may improve.
5.6 An impairment may require medical treatment and review before a determination can be made about whether the impairment is permanent or likely to be permanent. The impairment is, or is likely to be, permanent only if the impairment does not require further medical treatment or review in order for its permanency or likely permanency to be demonstrated (even though the impairment may continue to be treated and reviewed after this has been demonstrated).
5.7 If an impairment is of a degenerative nature, the impairment is, or is likely to be, permanent if medical or other treatment would not, or would be unlikely to, improve the condition.
a) The Tribunal cannot be satisfied that Ms Harding's impairments attributable to myasthenia gravis are permanent in circumstances where Ms Harding has been treated with a thymectomy and the expected recovery period has not elapsed so as to identify the extent of any improvement following treatment.[19] > > b) Given the potential overlap in the impairments experienced by Ms Harding with respect to her conditions of fibromyalgia and myasthenia gravis, it is premature to assess the permanency of Ms Harding's fibromyalgia prior to the outcome of her thymectomy being known.[20] > > c) With respect to the physical and sensory impairments attributable to either or both Ms Harding's fibromyalgia and myasthenia gravis, there is insufficient evidence for the Tribunal to be positively satisfied that there are no known, available and appropriate evidence-based clinical, medical or other treatments that would be likely to remedy Ms Harding's impairments.[21]
'Her symptoms, which are likely attributable to myasthenia, started in November 2020. She had worsening of tiredness and fatigue. She found that she had more difficulties with swallowing and was choking at times. She had difficulties with chewing solid food and had to change her diet on occasion. She also feels that her voice is more croaky at times. She has difficulties hanging up the washing and some weakness in her arms more than her legs. She has diplopia and blurred vision with tiredness on occasion, but denies ptosis'.[48]
'Symptoms included difficulties with talking and chewing as well as swallowing intermittently. She had mild shortness of breath. She had some difficulties with activities of daily living such as brushing her teeth or brushing her hair. She had frequent episodes of double vision and droopy eyelids. She has proximal arm and leg weakness with difficulties with mobilising from a chair. I believe that all of the above-mentioned symptoms are secondary to her myasthenia gravis. This is a typical presentation of this illness.'[69]
'Goal of therapy is stabilisation of her myasthenia. Myasthenia gravis is a complex autoimmune disorder. By its nature, it is fluctuating in severity on an irregular basis and as such, immunotherapy often needs to be adjusted depending on the clinical presentation and associated side effects of therapy. The impact on quality of life, mobility, community, and activities of daily living is substantial and will likely persist'.[70]
'[I]t is difficult to predict long term outcome in myasthenia gravis and whether meaningful improvement is possible. At present, she displays ongoing symptoms in the realms of talking, chewing and swallowing as well as breathing. She has ongoing difficulties with self-care such as brushing her teeth and combing her hair. She also has weakness of arms and legs with difficulties rising from a chair. Finally, she does have ongoing visual dysfunction with double vision'.[74]
'Melissa came back for review of her severe myasthenia gravis. She still has a myasthenia composite score of 13 and clearly symptomatic with predominantly bulbar symptoms. This is in spite of substantial doses of immunotherapy including mycophenolate 750 milligrams twice a day prednisone 15 milligrams daily, IVIg 4 weekly and rituximab in June this year. She is now 9 months after her thymectomy.
Further therapeutic avenues are limited. I did mention Zilucoplan to her which is a novel therapy which is not yet on PBS but is TGA approved and available through early access program. We will discuss this further with her in subsequent appointment. She would need to be vaccinated against meningococcus and pneumococcus before she could commence on this medication. I plan to review her in a few weeks.'
a) Whilst it is not entirely clear when Ms Harding was first diagnosed with fibromyalgia, the Tribunal accepts that she does live with fibromyalgia, and for her this presents as chronic sharp pain which affects her ability to function (physical impairment). In making this finding, the Tribunal notes that Dr Windley has been Ms Harding's treating general practitioner since 2019 and has overseen the management of her physical impairment since that time. The Tribunal considers he is therefore well placed to comment on both her physical impairment and the management of that. > > b) The Tribunal further finds that irrespective of when Ms Harding was diagnosed with fibromyalgia, her physical impairment preceded her involvement with Dr Windley. In making this finding, the Tribunal has accepted and given weight to the evidence from 2016 and 2017 authored by Dr Cooke, Dr Byth, Ms Hague and Ms Walsh confirming that Ms Harding was experiencing persistent pain that impacted her ability to function at that point in time. > > c) The Tribunal accepts Dr Windley's evidence that since 2019, Ms Harding's physical impairment has been treated with basic cares, physical therapy, home exercise programs, analgesics, muscle relaxants, anti-inflammatories, nerve agents, and a SNRI; and that to the best of Dr Windley's knowledge these treatments cover the range of treatments available in Australia to manage the symptomatology of fibromyalgia. The Tribunal further finds that prior to 2019, Ms Harding's physical impairment was reviewed by a senior consultant orthopaedic surgeon, treated with a range of medications and allied health therapies, a multidisciplinary rehabilitation program, and specified exercise. > > d) The Tribunal accepts Ms Harding was diagnosed with myasthenia gravis in 2021, and that for Ms Harding this currently presents as extreme fatigue, muscle weakness, difficulty chewing and swallowing, difficulty speaking and breathing, visual dysfunction, and bladder incontinence (physical and sensory impairments). In making these findings, the Tribunal has accepted and given significant weight to Associate Professor Blum's evidence in circumstances where he is a consultant neurologist and has also overseen the management of Ms Harding's myasthenia gravis since 2021. The Tribunal found Associate Professor Blum's reporting to be clinical and measured. The Tribunal has also given some weight to Dr Ter Horst's and Dr Windley's evidence, which included reference to bladder incontinence. > > e) The Tribunal accepts Associate Professor Blum's evidence that Ms Harding's physical and sensory impairments have been treated with long term immunotherapy which has comprised a range of medications used concurrently in varying dosages. Ms Harding's evidence that any improvement from IVIg does not last the full 28 days between treatments was corroborated by Dr Ter Horst's and Dr McLaughlin's evidence, and the Tribunal accepts this is so. The Tribunal is persuaded by Associate Professor Blum's evidence that despite rather high doses of immunotherapy, Ms Harding has severe, treatment refractory myasthenia gravis, and finds accordingly. > > f) Whilst Associate Professor Blum's evidence is that the goal of a thymectomy is stabilisation of disease and induction of remission, upon close analysis of his evidence as it relates to Ms Harding's thymectomy, Associate Professor's Blum's clinical opinion in May 2024 was that whilst it is possible Ms Harding will get some improvement post-thymectomy, the impact of her physical and sensory impairments will likely persist. This suggests to the Tribunal that Associate Professor Blum does not consider it likely the outcome of Ms Harding's thymectomy will be something approaching the removal or cure of her physical and sensory impairments, yet rather, at best it may result in some improvement of those impairments or a reduction of the medications which comprise her immunotherapy. The Tribunal finds accordingly. > > g) On the basis of Associate Professor Blum's reporting in May and September 2024, and Dr Windley's oral evidence regarding what had been reported to him in writing by Associate Professor Blum in October 2024 and February 2025, the Tribunal finds that as at February 2025 no clinical improvement had been achieved by Ms Harding's thymectomy, her myasthenia gravis remained severe, and 3 of the medications which comprise her immunotherapy had been increased. The Tribunal makes these findings despite Associate Professor Blum reporting that a slight improvement had been achieved by February 2024, as it is clear from that report that slight improvement had been in response to higher prednisone doses, not the thymectomy, and sustaining this dosage is problematic due to the side effects of long-term use. The Tribunal further finds that the trajectory of Ms Harding's myasthenia gravis post-thymectomy is, most unfortunately, moving in the wrong direction as evidenced by the dosage of 3 agents that comprise her immunotherapy having been increased. > > h) With respect to Zilucoplan, whilst raised by Associate Professor Blum in October 2024 as a medication he would discuss with Ms Harding at her subsequent appointment, his report to Dr Windley in February 2025 made clear he had decided not to change her medication at that time, other than to increase the dosage of one of her existing medications, and to review her in 4 months. This is consistent with Ms Harding's oral evidence that Zilucoplan was discussed but has not been included as part of her myasthenia gravis management. The Tribunal accepts Ms Harding's evidence that the information she was given during her neurology review was that if Zilucoplan was prescribed, it would replace rituximab and be one agent that comprises her immunotherapy.
Do Ms Harding's impairments result in substantially reduced functional capacity?
5.8 An impairment results in substantially reduced functional capacity of a person to undertake one or more of the relevant activities - communication, social interaction, learning, mobility, self-care, self-management (see paragraph 5.1(c)) - if its result is that:
(a) the person is unable to participate effectively or completely in the activity, or to perform tasks or actions required to undertake or participate effectively or completely in the activity, without assistive technology, equipment (other than commonly used items such as glasses) or home modifications; or
(b) the person usually requires assistance (including physical assistance, guidance, supervision or prompting) from other people to participate in the activity or to perform tasks or actions required to undertake or participate in the activity; or
(c) the person is unable to participate in the activity or to perform tasks or actions required to undertake or participate in the activity, even with assistive technology, equipment, home modifications or assistance from another person.
a) Excluding intermittent bladder incontinence, she is independent with toileting.[90] > > b) She experiences difficulties with all aspects of showering. Pain limits her ability to reach and wash all areas of her body. She relies on a carer provided through the Queensland Community Support Scheme (QCSS) for showering once per week and does not shower between her weekly supported shower. She feels overwhelmed with the task of showering and that undertaking this task will deplete her energy levels too much. He opined she would benefit from the use of a wall mounted shower seat, long handled shower aids, a grab rail in the shower and support around energy conservation.[91] > > c) She has modified her technique with dressing to maintain her independence, such as sitting to dress and wearing loose fitting garments. She also uses a dressing stick for lower limb dressing tasks.[92] > > d) She is impacted by fatigue when completing grooming tasks which necessitates pacing. By pacing she can usually participate in essential grooming, however occasionally she neglects these tasks. He opined she would benefit from advice around fatigue management and energy conservation.[93] > > e) She is able to participate in light meal preparation tasks. Her pain impacts her standing tolerance and hand function. Her eldest daughter provides some assistance with meal preparation tasks, and she receives commercial assistance for bulk meal preparation through QCSS. He opined she is likely to benefit from several items of assistive equipment.[94] > > f) She can complete grocery shopping online.[95] With pacing, she can load and unload a dishwasher.[96] > > g) She does not have the functional capacity for completing heavier house cleaning tasks such as vacuuming, mopping, bathroom scrubbing or window cleaning. She is able to complete short sessions of light cleaning of accessible surfaces.[97] > > h) Managing heavier laundry tasks is outside her functional capacity. With respect to lighter laundry tasks, her children load the machine, she operates the machine, her cleaner hangs the washing out to dry, and her children usually bring the washing in. He opined minor modifications to her laundry would improve her capacity to engage in this task.[98]
a) In February 2023 Dr Windley reported she finds it particularly difficult to lift arms over her head to wash or brush her hair because of poor muscle tone and fatigue; cannot always wash the lower part of her body; sometimes requires support to wash her entire body; has to wear slip on clothing and shoes; rarely brushes her teeth due to upper body strength and focus; has difficulties completing laundry tasks such as loading the laundry tub and hanging out washing; is limited with the time she can spend on folding and putting away laundry due to fatigue and limited mobility; is unable to complete cleaning tasks such as mopping, vacuuming, cleaning windows or walls and cleaning bathrooms; is unable to stand for long periods to prepare food and is limited to quick easy meals that do not require significant preparation or cooking time. He opined she would benefit from a shower chair or bench, and formal support with self-care and domestic tasks.[100] > > b) In March 2023 Ms Tasker reported that for Ms Harding, dressing is very slow due to fatigue and the need for energy conservation; she cannot wash her hair due to muscle weakness and fatigue when lifting her arms above her head; she receives physical assistance with showering; she struggles to shower once a week which is hygienically insufficient; she cannot manage big shops and has groceries delivered; she is unable to cook as she cannot stand for food preparation; she finds chopping and movement around the kitchen fatiguing; she can complete light household chores if she paces herself; heavier household chores do not get done; her children will on occasion help with the kitchen, but dishes are often left for a week; she is not managing laundry, cannot hang clothes out because of upper limb weakness, and does not have energy to fold washing.[101] Ms Tasker recommended support worker assistance for assistance with cooking, cleaning, laundry, shopping, showering, and hair washing.[102] > > c) In May 2024, Ms Yasmeen Hassan (Ms Hassan), an occupational therapist, reported that Ms Harding remains highly fatigable in the context of her myasthenia gravis and thus would highly benefit from additional services and assistance as outlined in Mr Dwyer's functional capacity assessment report.[103] Ms Hassan reported that Ms Harding's main barrier is her fatigue and the lack of formal and informal supports. She opined Ms Harding would benefit with support for hygiene, domestic assistance, meal preparation, transport, occupational therapy, PT, psychology, unspecified adaptive aids/technology and support for social engagement.[104] > > d) In May and September 2024, Associate Professor Blum reported that Ms Harding has some difficulties with activities of daily living such as brushing her teeth and brushing her hair.[105]
a) Ms Harding can independently toilet, dress, complete light meal preparation tasks, complete light household cleaning tasks (such as wiping the kitchen bench), and complete online shopping. In making these findings, the Tribunal accepted Mr Dwyer's evidence in relation to these tasks and noted that was generally consistent with Ms Tasker's evidence. Whilst Ms Harding's evidence was that she no longer uses online shopping for financial reasons, her evidence was to the effect that she does have the functional capacity to complete that task. > > b) Ms Harding cannot complete heavy cleaning tasks (such as vacuuming, mopping, bathroom scrubbing and window cleaning), heavy laundry (including bed linen), or meal preparation (excluding light meal preparation tasks). Mr Dwyer's and Ms Tasker's evidence in relation to these tasks was generally consistent, and the Tribunal accepts that evidence. > > c) Ms Tasker reported Ms Harding cannot wash her hair due to muscle weakness and fatigue; and consistent with this Ms Harding's own evidence is that she cannot wash her hair. Mr Dwyer did not expressly address this specific aspect of self-care, other than to say that within the context of showering, Ms Harding's widespread joint and muscle pain makes reaching and washing all areas of her body difficult; and the long-handled shower aids Mr Dwyer recommended appear to relate to washing difficult to reach body parts, rather than the task of hair washing.[106] The Tribunal accepts Ms Tasker's and Ms Harding's evidence with respect to this, and finds Ms Harding cannot wash her hair. > > d) Ms Tasker reported Ms Harding receives assistance with showering and that she struggles to shower once a week, which Ms Tasker considered to be hygienically insufficient. Ms Tasker opined Ms Harding needs support worker assistance for showering. Mr Dwyer reported that Ms Harding experiences difficulties completing all aspects of showering, showers once a week and relies on the use of a carer to shower. Ms Harding gave evidence to the effect that if she absolutely must shower herself, she can do this, but not without extreme difficulty and extreme consequences. The Tribunal found Ms Harding's evidence in relation to this, and indeed in general, to be honest, frank and without embellishment. The Tribunal is persuaded by the collective evidence that Ms Harding experiences such tremendous difficulty showering that she cannot shower often enough for the Tribunal to find that she can in fact shower independently. In the alternative, the Tribunal finds that there are limits to the difficulty and indignity a person can be expected to endure to shower themselves independently, and the experience as described by Ms Harding in evidence, which the Tribunal accepts as truthful, exceeds that limit. It follows that the Tribunal finds Ms Harding cannot shower without physical assistance. > > e) Mr Dwyer reported that Ms Harding is impacted by fatigue with grooming which necessitates pacing, but with pacing she can usually participate in essential grooming. Neither Ms Tasker nor Ms Hassan expressly reported on Ms Harding's functional capacity with respect to this task. In September 2024, Associate Professor Blum specifically identified brushing teeth and hair as tasks Ms Harding had difficulty with. The Tribunal presumes this is what was reported to him by Ms Harding. As at the time of the hearing, Ms Harding's evidence was that she had not brushed her hair for 3 weeks and cannot brush her hair independently. The Tribunal finds Ms Harding often neglects the task of grooming, and that this is because she usually requires physical assistance to complete this task. As is noted above, the Tribunal found Ms Harding to be a truthful witness who did not embellish when giving evidence. In relation to this task, the Tribunal preferred Ms Harding's evidence to that of Mr Dwyer's, which was based on an assessment completed on 6 March 2024. > > f) The Tribunal noted that both Mr Dwyer's and Ms Tasker's evidence was to the effect that Ms Harding has a very low participation rate in lighter laundry tasks. The Tribunal finds Ms Harding cannot hang clothes out to dry or bring them in once dry. In making this finding, the Tribunal noted Ms Tasker's assessment was consistent with Ms Harding's self-reporting to Dr Windley in relation to this and was corroborated by Mr Dwyer's evidence that this is completed by Ms Harding's informal and formal support. The Tribunal finds Ms Harding cannot fold clothing. In making this finding, the Tribunal noted that Mr Dwyer was silent in relation to this, and accepted Ms Tasker's evidence that Ms Harding does not have the energy for this. The Tribunal accepts Ms Harding can operate a washing machine and dryer, in that she can set those going, however it finds she cannot load and unload washing into those. In making this finding, the Tribunal gave weight to Mr Dwyer's evidence that Ms Harding's children currently do this for her, and to Dr Windley's evidence that Ms Harding reported to him this was something with which she had difficulty. Whilst Dr Dwyer opined that changing the layout of Ms Harding's appliances would significantly reduce the functional demands associated with this, he did not go so far as to say that modification will result in Ms Harding being able to do this. Considered as a whole, the Tribunal finds Ms Harding cannot complete lighter laundry tasks.
Do Ms Harding's impairments affect her capacity for social or economic participation?
Is Ms Harding likely to require support under the National Disability Insurance Scheme for her lifetime?
'NDIS supports are investments that help you build or maintain your functional capacity and independence, and help you work, study or take part in social life ...
... When we decide if you'll likely need support under the NDIS for your whole life, we consider:
for the decision herein of General Member L Proske
[6] All sections referred to in this Statement of Reasons, including in the footnotes, are sections in the National Disability Insurance Scheme Act 2013 (NDIS Act) unless otherwise stated.
[8] Item 24, Part 5 to Schedule 16 of the Administrative Review Tribunal (Consequential and Transitional Provisions No.1) Act 2024.
[9] In circumstances where Ms Harding's access request was made before 3 October 2024, amendments made by the National Insurance Scheme Amendment (Getting the NDIS Back on Track) Act 2024 (Amending Act) to the NDIS Act do not apply to this application: s 126 of the Amending Act.
[10] Drake and Minister for Immigration and Ethnic Affairs (1979) 46 FLR 409, 420.
[11] National Disability Insurance Agency v Davis [2022] FCA 1002 (Davis), [69].
[12] Mulligan v National Disability Insurance Agency [2015] FCA 544 (Mulligan), [51].
[14] s 24(1)(a); Respondent's Statement of Facts, Issues and Contentions (Respondent's SFIC), [19]-[21]; Respondent's closing submission.
[18] s 24(1)(b); Respondent's SFIC, [17], [29]-[31].
[40] E1, 443; Dr Windley, oral evidence.
[43] E1, 443; Dr Windley, oral evidence.
[45] E1, 133; Dr Windley, oral evidence.
[46] E1, 133, 334; Dr Windley, oral evidence.
[83] National Disability Insurance Agency v Foster [2023] FCAFC 11 (Foster), [64].
[84] Respondent's SFIC, [51], [56], [59], [65], [71], [74]; Respondent's closing submissions.
[107] Rooney and National Disability Insurance Agency [2021] AATA 3523, [27].
[110] Respondent's closing submissions.
[111] s 24(1)(a); Respondent's SFIC, [19]-[21]; Respondent's closing submission.
Mulligan
National Disability Insurance Agency
Mulligan v National Disability Insurance Agency [2015] FCA 544
National Disability Insurance Agency v Davis [2022] FCA 1002
Rooney and National Disability Insurance Agency [2021] AATA 3523
(1979) 46 FLR 409