austlii:cth/ARTA/2025/1084
General information, not legal advice.
ARTA
2025-07-22
Original judgment source is linked above.
PROCEDURAL HISTORY OF THE TRIBUNAL'S REVIEW AND ISSUES IN THE REVIEW
Request 1: psychology sessions at a frequency of 25 sessions per year.
Request 2: in-home respite at a frequency of four weeks per year.
Request 3: support worker assistance at a frequency of 30 hours per week.
Request 4: dietetics at a frequency of 10 hours per year.
Request 5: physiotherapy at a frequency of 10 sessions per year.
Request 6: support coordination at a frequency of 36 hours per year.
Request 7: exercise physiology at a frequency of 52 hours per year.
Request 8: positive behaviour support, at a frequency of 70 hours per year.
The duty of the Tribunal is to satisfy itself whether a decision in respect of which an application for review is duly instituted is a decision which, in its view, was objectively the right one to be made.[17]
The Tribunal effectively 'stands in the shoes' of the maker of the decision under review.[18] In undertaking its review, the Tribunal may exercise all of the powers and discretions that are conferred on the maker of the decision under review.[19] Also, the Tribunal may consider materials additional to those that were before the decision-maker.[20]
Further, pursuant to sub-item 138 of Schedule 1 of the amending Act transitional rules, being the National Disability Insurance Scheme (Getting the NDIS back on Track No.1) (NDIS Supports) Transitional Rules 2024 (the Transitional Rules) and the National Disability Insurance Scheme (Getting the NDIS Back on Track No. 1) (Miscellaneous Provisions) Transitional Rules 2024 (the Miscellaneous Transitional Rules) were made, and apply in the review of a decision concerning a SOPS completed on or after 3 October 2024.
Section 3(3) provides that in giving effect to the objects of the NDIS Act, regard is to be had to the need to ensure the financial sustainability of the NDIS.
4 General principles guiding actions under this Act
(1) People with disability have the same right as other members of Australian society to realise their potential for physical, social, emotional and intellectual development.
(2) People with disability should be supported to participate in and contribute to social and economic life.
(3) People with disability and their families and carers should have certainty that people with disability will receive the care and support they need over their lifetime.
(4) People with disability should be supported to exercise choice, including in relation to taking reasonable risks, in the pursuit of their goals and the planning and delivery of their supports.
(5) People with disability should be supported to receive reasonable and necessary supports, including early intervention supports.
(6) People with disability have the same right as other members of Australian society to respect for their worth and dignity and to live free from abuse, neglect and exploitation.
(8) People with disability have the same right as other members of Australian society to be able to determine their own best interests, including the right to exercise choice and control, and to engage as equal partners in decisions that will affect their lives.
(11) Reasonable and necessary supports for people with disability should:
(a) support people with disability to pursue their goals and maximise their independence; and
(b) support people with disability to live independently and to be included in the community as fully participating citizens; and
(c) develop and support the capacity of people with disability to undertake activities that enable them to participate in the community and in employment.
(12) The role of families, carers and other significant persons in the lives of people with disability is to be acknowledged and respected.
(12A) The relationship between people with disability and their families and carers is to be recognised and respected.
(16) Positive personal and social development of people with disability, including children and young people, is to be promoted.
(17) It is the intention of the Parliament that the Ministerial Council, the Minister, the Board, the CEO, the Commissioner and any other person or body is to perform functions and exercise powers under this Act in accordance with these principles, having regard to the need to ensure the financial sustainability of the National Disability Insurance Scheme.
31 Principles relating to plans > > The preparation, variation, reassessment and replacement of a participant's plan, and the management of the funding for supports under a participant's plan, should so far as reasonably practicable: > > (a) be individualised; and > > (b) be directed by the participant; and
(c) where relevant, consider and respect the role of family, carers and other persons who are significant in the life of the participant; and
(ca) where relevant, recognise and respect the relationship between participants and their families and carers; and
(d) strengthen and build capacity of families and carers to support participants who are children; and
(da) if the participant and the participant's carers agree - strengthen and build the capacity of families and carers to support the participant in adult life; and
(e) consider the availability to the participant of informal support and other support services generally available to any person in the community; and
(f) support communities to respond to the individual goals and needs of participants; and
(g) be underpinned by the right of the participant to exercise control over his or her own life; and
(h) advance the inclusion and participation in the community of the participant with the aim of achieving his or her individual aspirations; and
(i) maximise the choice and independence of the participant; and
(j) facilitate tailored and flexible responses to the individual goals and needs of the participant; and
(k) provide the context for the provision of disability services to the participant and, where appropriate, coordinate the delivery of disability services where there is more than one disability service provider.
The supports that will be funded or provided under the National Disability Insurance Scheme may be specifically identified in the plan or described generally, whether by reference to a specified purpose or otherwise.
(a) have regard to the participant's statement of goals and aspirations; and
(b) have regard to relevant assessments conducted in relation to the participant; and
(c) be satisfied as mentioned in section 34 in relation to the reasonable and necessary supports that will be funded and the general supports that will be provided; and
(d) apply the National Disability Insurance Scheme rules (if any) made for the purposes of section 35; and
(e) have regard to the principle that a participant should manage his or her plan to the extent that he or she wishes to do so; and
(f) have regard to the operation and effectiveness of any previous plans of the participant; and
(g) have regard to whether section 46 (acquittal of NDIS amounts) was complied with in relation to any previous plan for the participant.
(aa) the support is necessary to address needs of the participant arising from an impairment in relation to which the participant meets the disability requirements (see section 24) or the early intervention requirements (see section 25);
(a) the support will assist the participant to pursue the goals, objectives and aspirations included in the participant's statement of goals and aspirations;
(b) the support will assist the participant to undertake activities, so as to facilitate the participant's social and economic participation;
(c) the support represents value for money in that the costs of the support are reasonable, relative to both the benefits achieved and the cost of alternative support;
(d) the support will be, or is likely to be, effective and beneficial for the participant, having regard to current good practice;
(e) the funding or provision of the support takes account of what it is reasonable to expect families, carers, informal networks and the community to provide;
(f) the support is an NDIS support for the participant.
(a) the time at which the disability requirements or the early intervention requirements need to be met is the time the CEO decides to approve the statement of participant supports; and
(b) a participant's disability support needs arising from an impairment in relation to which the participant meets the disability requirements or the early intervention requirements may be affected by a variety of factors, including environmental factors or the impact of another impairment in relation to which the participant does not meet either of those requirements.
Whether a support is "reasonable" requires a different assessment to whether a support is "necessary". Again, it is not necessary in the context of this proceeding to be definitive about the nature and extent of the meaning of the phrase, or its components. It is enough to observe that using the concept of necessity would appear to tie one aspect of the CEO's assessment to an evaluation of the kinds of factors set out in s 34(1)(a) and (b) and (d). The word "reasonable" would appear to be directed at factors such as those set out in s 34(1)(c) and (f). That is not to say the meaning of each word is exhausted by the factors set out in s 34(1): rather, it is to illustrate the different work that each concept does as an adjective in the phrase "reasonable and necessary supports".
Relevantly to this proceeding, the factor set out in s 34(1)(e) ("funding or provision of the support takes account of what it is reasonable to expect families, carers, informal networks and the community to provide") goes to both whether a support is "reasonable" (in the sense of it being subject to provision or funding by the Agency) as well as whether it is "necessary" (in the sense of whether it is a support that cannot be provided by others).
In my opinion, the text and context of s 33(5)(c), read with s 34(1) indicates that the CEO (or the delegate or Tribunal) must either be satisfied that a support has the character of being a reasonable and necessary support, or that it does not. Once a support is identified and described (to take an example away from this case, speech therapy lessons three times a week), then the question for the CEO (or the delegate or Tribunal) is whether she or he is satisfied that support, as identified, is reasonable and necessary for that particular participant. It may be open to the CEO to be satisfied that a differently identified support is reasonable and necessary: in this example, speech therapy lessons once a week. That determination can only be made on the basis of probative evidence.[25]
The phrase is a composite phrase. We accept the Agency's submissions that each limb of the phrase should be given work to do. That task is not difficult, or complicated, with these two particular words, which are readily understood as conveying different meanings. However, the Parliament has chosen to use a composite phrase rather than to stipulate two distinct requirements, and therefore, as Gleeson CJ cautioned in XYZ v Commonwealth [2006 HCA 25; (2006) 227 CLR 532 at [19], '[t]here are many instances where it is misleading to construe a composite phrase simply by combining the dictionary meanings of its component parts'. > > In our opinion, such a danger is present on the construction arguments presented by the Agency. Both adjectives qualify the noun 'support', but they do so as a composite phrase. It is not fruitful to split them off and consider them separately, just as it is neither fruitful nor appropriate to attempt any exhaustive or authoritative judicial definition of them. > > Nevertheless, there is no doubt that the contextual use of the phrase in this Act links it to public funding to be provided to a participant. In that context, the phrase connotes supports which meet a threshold which justifies - by reference to the context, objects and guiding principles of the Act and the facts of the case - the expenditure of public funds for that support, for a particular participant. As we have already explained, the phrase also needs to be understood taking into account what has qualified a person as a participant, and the links between a person's impairment and their full participation in the community, in the same variety of ways as persons without a disability might choose to participate. It is not accidental, in our opinion, that Parliament has chosen the term 'participant' to describe individuals who will receive funded support: the choice of that term reinforces, as we have sought to explain, that the driving objective of this Act is the holistic, improved and increased participation by persons with disability in the life of their communities, and in life itself. > > ... > > Ultimately, as the Full Court in McGarrigle recognised, the statutory task of determining the contents of a participant's plan, and what are the reasonable and necessary supports, is a fact‑intensive exercise. More so than in many legislative schemes that confer an administrative benefit, the circumstances of each participant will vary greatly. The exercise is highly individualised. There will be an area of 'decisional freedom' (Minister for Immigration and Citizenship v Li at [28] (French CJ)) for the decision‑maker, about what supports fall within this description, given the circumstances of a particular individual. Provided no substantive legal error attends the choices made, it is possible for reasonable minds exercising the power under s 33(2) to differ. So too on merits review. [26]
(a) methods or criteria to be applied, or matters to which the CEO is to have regard, in deciding, the reasonable and necessary supports or general supports that will be funded or provided under the National Disability Insurance Scheme; and
(b) reasonable and necessary supports or general supports that will not be funded or provided under the National Disability Insurance Scheme; and
(c) reasonable and necessary supports or general supports that will or will not be funded or provided under the National Disability Insurance Scheme for prescribed participants.
209 The National Disability Insurance Scheme rules
(1) The Minister may, by legislative instrument, make rules called the National Disability Insurance Scheme rules prescribing matters:
(a) required or permitted by this Act to be prescribed by the National Disability Insurance Scheme rules; or
(b) necessary or convenient to be prescribed in order to carry out or give effect to this Act.
These Rules are made for the purposes of sections 33 and 34 of the Act.
These Rules are about assessment and determination of the reasonable and necessary supports that will be funded for participants under the NDIS.[27]
3.1 In deciding whether the support represents value for money in that the costs of
the support are reasonable, relative to both the benefits achieved and the cost of
alternative support, the CEO is to consider the following matters:
(a) whether there are comparable supports which would achieve the same
(b) whether there is evidence that the support will substantially improve the life
stage outcomes for, and be of long-term benefit to, the participant;
(c) whether funding or provision of the support is likely to reduce the cost of the funding of supports for the participant in the long term (for example, some early intervention supports may be value for money given their potential to avoid or delay reliance on more costly supports);
(d) for supports that involve the provision of equipment or modifications:
(i) the comparative cost of purchasing or leasing the equipment or
(ii) whether there are any expected changes in technology or the
participant's circumstances in the short term that would make it
inappropriate to fund the equipment or modifications;
(e) whether the cost of the support is comparable to the cost of supports of the
same kind that are provided in the area in which the participant resides;
(f) whether the support will increase the participant's independence and
reduce the participant's need for other kinds of supports (for example,
some home modifications may reduce a participant's need for home care).
Effective and beneficial and current good practice
3.2 In deciding whether the support will be, or is likely to be, effective and beneficial
for a participant, having regard to current good practice, the CEO is to consider
the available evidence of the effectiveness of the support for others in like
(a) published and refereed literature and any consensus of expert opinion;
(b) the lived experience of the participant or their carers; or
(c) anything the Agency has learnt through delivery of the NDIS.
3.3 In deciding whether the support will be, or is likely to be, effective and beneficial
for a participant, having regard to current good practice, the CEO is to take into
3.4 In deciding whether funding or provision of the support takes account of what it is
reasonable to expect families, carers, informal networks and the community to
provide, the CEO is to consider the following matters:
(i) that it is normal for parents to provide substantial care and support for children; and
(ii) whether, because of the child's disability, the child's care needs are substantially greater than those of other children of a similar age; and
(iii) the extent of any risks to the wellbeing of the participant's family
(iv) whether the funding or provision of the support for a family would
improve the child's capacity or future capacity, or would reduce any risk to the child's wellbeing;
(c) for all participants - the desirability of supporting and developing the
potential contributions of informal supports and networks within their
Part 5 General criteria for supports, and supports that will not be funded or provided
5.1 A support will not be provided or funded under the NDIS if:
(a) it is likely to cause harm to the participant or pose a risk to others; or
(b) it is not related to the participant's disability; or
(c) it duplicates other supports delivered under alternative funding through the NDIS; or
(d) it relates to day-to-day living costs (for example, rent, groceries and utility
fees) that are not attributable to a participant's disability support needs.
5.2 The day-to-day living costs referred to in paragraph 5.1(d) do not include the
following (which may be funded under the NDIS if they relate to reasonable and
(a) additional living costs that are incurred by a participant solely and directly
(b) costs that are ancillary to another support that is funded or provided under
the participant's plan, and which the participant would not otherwise incur.
... (the Rules) are an important element of the legislative scheme, introducing the ability to modify the operation of ss 33 and 34 by, for example, excluding certain kinds of supports from inclusion in participant plans. It is through the Rules that the executive is able to implement, within the federalism constraints imposed in s 209, some policy decision-making about the nature and extent of supports to be provided or funded under the NDIS.[30]
I understand that LVQH is on a behaviour support plan with the NDIS as he was threatening and he has pulled knives and pushed his mother off the lounge. He has scared away two health care workers. His mother has tried various strategies. When he is getting violent he needs to be restrained (he is more aggro). All sharp objects have been removed by the house. At school he is in a special focus class for literacy. > > His mother has been stressed because of his behaviour and his brother is copying his behaviour. He can wake screaming and he has run away when his mother has asked him not to.
Over the past 5 months LVQH's engagement in daily activities and in the community has become quite restricted due to an increase in his challenging behaviours, such as reduced safety awareness, breaking household items, and physically harming his mother, brother and the pets.[46]
Vineland Scale - the questionnaire forms were completed by Ms L. Ms Featherstone reported:
LVQH has an overall percentile ranking of 1/100 which indicates a severe reduction in his ability to complete daily activities or adapt to changes in his environment or supports. When considering the difference between Domains of function, the Vineland-3 shows a significant difference between communication and self-care, indicating that LVQH's ability to communicate is higher than his ability to generalise instructions into everyday activities. This difference can easily cause frustration for LVQH when support in his daily activities is not accessible.
Although LVQH's gross and fine motor skills have scored as a "relative strength", LVQH's strong desire for gross motor play currently limits his development of more complex skills like social interactions and self-care. Using a strengths-based approach requires qualified allied health providers to work collaboratively to design programs and explain strategies to support services.
LVQH's participation in social, play, and leisure activities is restricted, and LVQH struggles to keep up with peers during group activities due to social and communication differences. Additionally, LVQH often rejects others' ideas, preferring to engage only in tasks where he feels confident. This can lead to frustration and avoidance of learning more complex motor skills, particularly in self-care tasks. The "relative strength" score in motor skills also poses a risk when LVQH is escalated as his physical strength and motor skills allow him to be more coordinated and targeted in his destructive behaviours.
LVQH's poor receptive language skills impact his interpersonal relationships and coping skills, as his ability to understand language does not translate into effective social interactions or emotional regulation, further increasing risks of social isolation and frustration. LVQH's expressive language skills and play and leisure skills, are below that of a 3y10m old child and his ability to articulate his ideas do not necessarily translate into meaningful engagement in play activities due to extremely low coping and interpersonal skills ( LVQH will, for example, further develop his balance and coordination skills, so that he is able to play soccer on the oval at school with his peers. LVQH will also be supported to use a functional pencil grip so that he is able to form letters, manage buttons and zippers on clothing, and use cutlery to eat a meal.
Request 3: support worker assistance at thirty hours per week
'support to sustain the informal support provided to LVQH and his family with personal care. Hours are based on 10 hours per week for the first 3 months of the plan, 6 hours per week for the next 3 months of the plan, and 4 hours per week for the following 3 months.
Behaviour Support - Supports to help you develop behavioural management strategies to reduce behaviours of concern. This includes specialist behavioural intervention supports to help improve your quality of life.
Improved Daily Living Skills - Assessment, training or therapy (including Early Childhood Intervention) to help build your skills, independence and community participation. These services can be delivered in groups or individually.
Having a support worker would and has assisted LVQH with everyday tasks. This helps him be more independent at home and in the community setting. Support workers also complete and follow the advice and homework of the therapist, and school (LVQH is in a special focused learning group at school due to him not hitting the appropriate milestones for his age), with one-to-one support for LVQH. As provided in my evidence, every health care professional, inclusive of LVQH's paediatrician recommends in home and community support.
The community access LVQH was having, was with a support worker present in busy areas, due to LVQH's behaviours of overstimulation, aggression, and his inability to control his emotions. Without a support worker, not only is LVQH socially isolated, but we as the family unit are isolated, as taking the children out into the community, exceeds my parental capacity. Not having support workers also means that there is a drastic decline in assisting LVQH to complete everyday task such as getting ready for school, personal hygiene and home etiquette.[57]
LVQH's behaviours require 1-1 supports, and when this is unavailable, LVQH experiences escalating behaviours relating to frustration over a lack of skills in daily activities, poor social interaction and play skills, and atypical sensory processing, creating a sense of autonomic urgency which influences LVQH's behavioural responses. Disability support workers are required to provide LVQH with 1-1 attention and implement behavioural strategies during routines and community access. Without these support workers, LVQH's family are highly reluctant to visit community locations due to the high likelihood of behavioural escalations and safety concerns.[62]
- 7am-9am - self-care support and implementation of social/emotional skill development strategies
- 3:30pm - 6:30pm - self-care support and implementation of social/emotional skill development strategies
- Family outing to the park or similar public environment (5-hours) including preparing and transitioning from at-home activities to the car and supporting emotional regulation upon return. While in the community, providing 1-1 supervision for impulse control, safety in public spaces, and co-regulation.
With consistent high-level, predictable supports, LVQH is likely to gain positive associations with self-care tasks through successful repetition with a neutral (non-family) person who can provide physical assistance and emotional regulation. The positive associations then provide opportunities for LVQH to become more engaged with self-care activities and have greater potential to develop independence. Similarly, successful community participation with 1:1 support allows LVQH to explore his community, new environments, and activities of interest, therefore reducing social isolation risks and aiming to increase LVQH's enjoyment in the community.
With LVQH's Core Support funding reduced in his current plan, his mother ... is more involved in LVQH's care. Previous relationships that LVQH has formed with disability support workers have provided him with opportunities to reduce the dependency on his mother which increased his intrinsic motivation to learn new skills. The requested support worker assistance aims to enhance LVQH's goal achievement and improve his capacity to be independent by offering sustained and predictable attuned engagement. This 1:1 engagement by a neutral person is essential for fostering skill development and capacity-building (i.e. a 'safe' learning environment) for LVQH. Consistency of support will create the stability that LVQH needs to increase capacity and accelerate skill acquisition towards greater independence.
Yes, the recommended 30 hours per week of support worker assistance is considered an optimal use of assistance by a support worker. The recommended hours have been determined in consultation with LVQH's mother, the Behaviour Support Practitioner, and from evidence in the psychologist's report and previous reports from support worker services. The hours recommended have been itemised to cover the required tasks when LVQH needs 1:1 supervision.[65]
LVQH has a comprehensive behaviour support plan, which requests that support workers provide assistance to implement strategies effectively. LVQH's therapeutic plan includes collaboration with his informal supports, such as his mother and school, to provide consistent strategies across all settings. Training will be provided to Support Workers on how to implement existing successful strategies which increases the continuity and effectiveness of formal support. This comprehensive approach ensures that the allocated hours will be used efficiently to support LVQH's development and independence.
LVQH has the skills to independently complete personal self-care tasks (e.g., dressing, showering, toileting). However, he usually refuses to complete these tasks independently and relies on his mother Ms L for assistance/prompting to complete these tasks for him. For instance, he will often ask Ms L to get him a glass of water or for Ms L to accompany him to the bathroom and wait outside.[70]
Support Workers - LVQH would benefit from support workers (trained in the Behaviour Support Plan) to provide opportunities for structured activities and support with skill building and building social relationships. This support is also essential to provide LVQH with opportunities to participate in community-based activities and interact with others, reducing his risk of social isolation.[71]
Disability Support Worker involvement under NDIS funding is necessary to assist LVQH with daily living skills and to facilitate social participation and personal safety. This type of support would enable LVQH increased opportunities to develop his daily living skills and social skills interacting with similar aged peers. This would also alleviate a substantial burden from his sole carer Ms L who is at risk of carer burnout.[73]
In LVQH's case, the issue appears to be his behaviour rather than his capacity to undertake daily living tasks at home. As noted above, it is not possible to determine from the information provided the extent to which this is a direct expression of his neurodevelopmental problems
Without an explanation for his behaviour (beyond attributing it to his diagnoses) it is not possible to ascertain the best mix of support services at home.[80]
(ii) The Agency accepted that, upon consideration of the evidence, it is reasonable and necessary in all of the circumstances that LVQH be provided with support worker assistance, but not at the 30 hour rate requested. > > (iii) Noting the evidence about LVQH's reported behaviours of concern, particularly non-compliant and oppositional behaviours, and the reported escalation of those behaviours, the Agency accepts that these behaviours represent a risk of carer burnout and therefore support worker assistance is appropriate. > > (iv) It was accepted that positive behaviour support intervention via psychological treatment) was an appropriate support to include in LVQH's plan (Request 1). > > (v) Further support could be provided through the behaviour support practitioner to explore environmental and contextual adjustments to manage and mitigate risk regarding LVQH's behaviours of concern (Request 8). > > (vi) Support worker assistance at a frequency of 13 hours per week, comprising 10 hours per week for assistance with self-care and three hours per week for community participation, was reasonable and necessary. > > (vii) There is insufficient evidence which demonstrates that 30 hours per week of support worker assistance is reasonable and necessary; will be effective and beneficial to the Applicant; and represent value for money, in accordance with sections 34(1)(c)-(d) of the NDIS Act and Rule 3.1 of the Support Rules. > > (viii) Insofar as support worker assistance is requested to assist Ms L to transport LVQH to and from school, it is reasonable to expect a parent to undertake this task, pursuant to section 34(1)(e) and Rule 3.4 of the Support Rules. > > (ix) The Tribunal could not be positively satisfied that the full 30 hours sought by the Applicant, as opposed to the 13 hours proposed by the Agency, is reasonable and necessary in accordance with sections 34(1)(c)-(e) of the NDIS Act.[82]
Include Support Worker funding - in home and in the community 30 hours per week
NDIS Act section 34(1)(e) criteria: Reasonable expectation of families. Carers, informal supports and the community.
All NDIS supports must take into account what is reasonable to expect families, carers, informal networks and the community to provide. Supports funded by the NDIS are intended to complement the informal supports available, by considering what is reasonable for families, carers, informal networks and the community to provide. I am not satisfied this support is best provided by the NDIS.
Regarding your request for Support Worker funding, I acknowledge that LVQH had responded well to support workers in his previous plan and had assisted him with his daily routine (Item 12). However, the intention of support worker funding with a step down approach is to implement strategies and build the capacity of informal support to help establish routines, so children can complete certain daily tasks without the need for a support worker in future. LVQH's current BSP includes ongoing support from a Behaviour Support Practitioner who will aim to support him in developing his skills for emotional regulation, as well as to provide direct support to educate you in appropriate behaviour management techniques (Item 5).
If you require In Home Care (IHC) support, you can visit the In Home Care - Department of Education, Australian Government website to see if this service is right for you. As per our guidelines, we outline that we can't fund supports that mainstream and community services should provide, even if the other service system doesn't actually provide it. The NDIA does not make up for other organisations and services, where it's their responsibility to fund or provide a service you need. Therefore, at this point in time, your request for Support Worker funding has been declined.[83]
Request 2 - in-home respite for four weeks per year
Respite would allow me and to have much needed time apart from LVQH, whilst also ensuring LVQH's needs, wants and functional capacity are being addressed. For myself to have planned time away from LVQH would mean I am able to get the respite needed to continue to provide most of LVQH's care. It will also allow me to focus on [LVQH's brother], so I can address his complex needs of emotional attachment disorder and ADHD.[91]
Respite is essential for Ms L, as it allows her to take necessary breaks from the demands of caregiving, ensuring she can maintain her own well-being and continue to provide effective support for LVQH's needs.[94]
LVQH's mother is experiencing carer burnout and continues to provide appropriate care for LVQH with consequences to her own wellbeing and social participation. LVQH's mother, Ms L, reports to have lost contact with many of her friends and is often too exhausted for social interactions when LVQH does occasionally stay with his father because of LVQH's overnight (multiple wakings needing 1-1 care) and intense daytime care need. LVQH's mother works while LVQH is at school, as do most parents, therefore school time is not considered a suitable alternative time for carer respite activities.
A combination of in-home and short-term accommodation respite are likely to meet LVQH's needs and support his mother's ability to sustain her informal carer duties. The following outlines the intended use for these respite hours -
- Two (2) supported school holiday trips (5 days, 4 nights each) where the family will fund the daily activities and travel
- Two (2) days, One (1) night blocks of respite - twice per term and one (1) during summer holidays (18 days per year)
Total respite is therefore 10 days (24/7) in a new location, and 18 days in-home care with support workers increased to 9-hours per day, not including any overnight support. These options allow Mum to engage in her own self-care and reconnect with informal social supports that will provide future wellbeing resilience for Mum's ability to sustain her carer duties.
In the calculation of support, including in-home respite, I would begin with family's ability to undertake day to day life. If this family falters, if LVQH's mother's mental health worsens, the long term will be worse for LVQH in addition to greater potential future liability for
the NDIS (and other government systems). For this reason I support respite and home supports with the goal of 'manageability' of day to day life. This is not the same as capacity building.[99]
It could be duplication. It depends on the purposes of the support work - the extent to which it is functional and extent to which it is intended for capacity building.[100]
But the working principle I've got is that if you're operating in the world in the best interests of the child, making sure that the family is going to survive and be happy and do its job properly is probably right at the front of considerations.
So I've got a strong bias towards helping the family survive and do it so that the kid has the best chance of growing up with a good life.
Exactly what that means in terms of week to week support and periods of respite care, I really don't know. I mean, other families with single parents manage this. There's such huge diversity. I think it's just a, a kind of a calculation based on what's fair and reasonable.
... the Applicant has been attending out of school hours care for a number of years. The Respondent considers that the implementation of behaviour and inclusion supports will assist the Applicant to participate in this type of care and that it is in the best interests of the Applicant to participate in social settings such as outside of school care, rather than being at home with a one-on-one support worker.[104]
The NDIA submits that the purpose of the community access support is to assist JQJT's social participation and not to provide his parents with respite. We accept that submission but, when considering the wellbeing of any family caring for a person with serious disabilities, the two cannot readily be separated; respite is a secondary benefit that goes to the well-being of the family.[106]
Requests 5 and 7 - physiotherapy at 10 sessions per year, and exercise physiology at 52 hours per year
On assessment, LVQH was co-operative and able to follow instructions well to complete required tasks. LVQH walked independently with a heel toe gait and appropriate foot progression angles. He generally walked quite quickly, but had an appropriate gait pattern when walking at a more regular pace with his hand held. He walked on his toes on the rare occasion when he was excited or stimulated. He was able to run with good speed, but tended to skip or gallop at times when excited. He stood with reasonable foot and lower limb alignment. He sat with good sitting posture in various positions and was able to sustain static positioning for a reasonable length of time.
On examination, LVQH had full hip flexion and knee flexion and extension range ... [H]is ankle dorsiflexion was sufficient ... . His upper limbs were not formally tested, but functionally had range within normal limits. He had no increase in muscle tone or spasticity and reflexes were not tested at this time.
Stairs were able to be climbed reciprocally ascending and descending. His strength was age appropriate with LVQH being able to squat well with good alignment at most times. He could easily walk on his toes and heels and perform animal walk such as bear and crab walk. He could walk along a beam and forwards and backwards and along a line with only minimal loss of balance. He was able to jump repetitively with 2 feet together with good height and amplitude and perform a standing broad jump of 150cm. He could hop with good strength, speed and amplitude and change directions. He could stand and balance on each leg for only a few seconds at a time. More complex coordination skills such as star jumps required repeated practice and were performed with reduced coordination of speed and control. He was unable to perform scissor jumps which require more alternating coordination. When kicking a soccer ball and dribbling LVQH had developing control. However when asked to move around obstacles with the ball or run to kick a moving ball he was noted to gallop or skip rather than run. This was more obvious when he was excited or cognitively focused on another task.
Supports that maintain or increase physical mobility or well-being through personal training or exercise physiology to address the functional impact of the participant's disability.
(a) accessing services from an appropriately qualified professional;
(b) assessment and development of a personalised exercise program which aims to increase or maintain a participant's functional capacity;
(c) maintenance of muscle strength, range of motion, balance and mobility.
Supports that provide evidence-based therapy to help participants improve or maintain their functional capacity in areas such as language and communication, personal care, mobility and movement, interpersonal interactions, functioning (including psychosocial functioning) and community living.
This includes an assessment by allied health professionals for support planning and review as required.
5.1 A support will not be provided or funded under the NDIS if:
(c) it duplicates other supports delivered under alternative funding through the NDIS.
'LVQH's mobility at home and in the community is not directly affected by his primary disability; however, additional demands, such as social and sensory challenges, increase his cognitive load, often resulting in physical fatigue, withdrawal, or reduced capacity in other functional domains.'[129]
By his mother, and Mr Ben Armstrong of People with Disability Australia
[1] Closing submissions made by Ms L, 18 March 2025.
[2] Autism Spectrum Disorder, Level 2 (ASD).
[3] Exhibit 1, T-Documents, Document T23, NDIS Plan (20 April 2024-20 April 2025), pages 158-177.
[4] T-Documents, Document T8, Interaction Notes, section 100 request, 23 April 2024, pages 43-45.
[5] T-Documents, Document T2, Internal Review Decision, 25 July 2024, pages 10-17.
[6] T-Documents, Document T1, Application for Review of Decision (undated), pages 1-2.
[7] Administrative Review Tribunal Rules 2024, Rule 5(3).
[8] Adopting the numbering used in the Agency's Statement of Facts, Issues and Contentions (Hearing Bundle, Document R3, [7]).
[9] Email from Mr Armstrong dated 28 February 2025.
[10] Hearing Bundle, Document R3, Agency's Statement of Facts, Issues and Contentions, [9].
[11] Report of Early Links Occupational Therapy Services dated 13 March 2025.
[12] Hereafter referred to as Doctor McDowell.
[13] Exhibit 3 (this version replaced an earlier version that had initially been contained within the Hearing Bundle).
[15] Email dated 14 March 2024 from Moray & Agnew.
[16] This section is adapted from previous decisions of the Member.
[18] Shi v Migration Agents' Registration Authority [2008] HCA 31; (2008) 235 CLR 286, 324-325, 327 (Kiefel J).
[20] Shi (note 17) 300-301 (Kirby J); 314-315 (Hayne and Heydon JJ); 327-328 (Kiefel J).
[21] Beezley v Repatriation Commission [2015] FCAFC 165 [68], as applied in Sutherland v National Disability Insurance Scheme [2024] AATA 411 [53].
[22] National Disability Insurance Scheme Amendment (Getting the NDIS Back on Track No 1) Act 2024 (Cth), s 2.
[23] The Agency addressed these matters in its Statement of Facts, Issues and Contentions (Hearing Bundle, Document R3, [24]-[36].
[24] Item 132 of Schedule 1 of National Disability Insurance Scheme Amendment (Getting the NDIS Back on Track No 1) Act 2024.
[25] McGarrigle v National Disability Insurance Agency [2017] FCA 308 (McGarrigle), at [91]-[93].
[26] National Disability Insurance Agency v WRMF [2020] FCAFC 79 (WRMF), at [149]-[152].
[27] This section is also repeated in Part 1 of the Support Rules.
[28] Which in turn reflect some of the requirements under section 34(1) of the Act.
[32] G v Minister for Home Affairs [2019] FCAFC 79, [18].
[33] Re Drake and Minister for Immigration and Ethnic Affairs (No. 2) (1979) 2 ALD 634, 645 (President Brennan J).
[35] Ibid, and also Hearing Bundle, Document A31, pages 112-113 (Undated letter from a Nurse Unit Manager, Ms L's employer) and Hearing Bundle, Document A4 (report dated 26 September 2024 provided by Cronulla Nursing Services, at page 12)
[36] Hearing Bundle, Document A12, page 59 (Letter from Ms L's psychiatrist, dated 5 November 2024).
[37] Hearing Bundle, Document A17, Report of Dr Tong, dated 28 November 2024, page 71.
[38] Hearing Bundle, Document A3, Paediatrician's report, pages 8-9.
[39] The owner/manager of that business, Ms McKirdy, also gave evidence at the review hearing.
[40] Hearing Bundle, Document A4, pages 10-14.
[41] Hearing Bundle, Document A20, pages 75-78.
[42] Hearing Bundle, Documents A14, A19, A22, A27, A28, A29 and A30.
[43] Hearing Bundle, Document A6, Occupational Therapy Functional Capacity Assessment, pages 24-33 (report authored by Ms Ellyn Featherstone).
[44] Exhibit 5, LVQH Occupational Therapy Additional Assessment Information, 13 March 2025 (report authored by Ms Jacky Pelle and Ms Ellyn Featherstone).
[45] A report from the Occupational Therapy service that was previously working with LVQH was contained in the T-Documents (Exhibit 1, Document T3, pages 18-19, Report of Hopalong Occupational Therapy for Children, dated 22 November 2023).
[46] Hearing Bundle, Document A6, page 24.
[50] Exhibit 4, NDIS plan dated 13 December 2024.
[51] T-Documents, Document T21, NDIS Plan 20 April 2022 - 20 April 2023, pages 132-143.
[52] T-Documents, Document T22, NDIS Plan 21 April 20223 - 20 April 2024, pages 144- 157.
[53] T-Documents, Document T23, NDIS Plan 20 April 2024 - 20 April 2025, pages 158-177.
[54] This plan contained the following explanation for 'stated supports': Where a support is listed as 'stated' in my plan, I must buy this support as described in my plan, I cannot swap 'stated 'supports for any other supports.
[55] Exhibit 4, NDIS Plan 13 December 2024 - 12 June 2025.
[57] Hearing Bundle, Document A7, Carer Impact Statement of Ms L, pages 37-38.
[60] Hearing Bundle, Document A6, Report of Ms Featherstone, pages 26 and 29.
[64] Hearing Bundle, Document R2, Response to Targeted Questions of Ms Featherstone, dated November 2024, pages 7-9.
[65] Ms Featherstone provided a table of activities that a support worker would assist LVQH with; see Hearing Bundle, Document R2, page 7.
[66] T-Documents, Document T20, Comprehensive Behaviour Support Plan, dated 22 May 2024, pages 86-131.
[67] T-Documents, Document T14, My Support Plan (prepared by Ms Ellen Small), dated 29 April 2024, pages 57-66. It is noted that a previous support plan prepared by another practitioner was also before the Tribunal - T-Documents, Document T5, Support Plan (prepared by Ishi Dixit), dated 6 December 2023, pages 23-32.
[68] T-Documents, Document T18, Behaviour Support Plan Review Report (Ms Small), dated 10 May 2024, pages 78-84.
[69] Hearing Bundle, Document A5, NDIS Plan Review Report (Ms Ellen Small), dated 27 September 2024, pages 15-23.
[71] T-Documents, Document T18, BePlan Review Report, dated 10 May 2024, page 82.
[72]Hearing Bundle, Document A5, NDIS Plan Review Report, dated 27 September 2024, pages 15-23.
[74] Hearing Bundle, Document A4, Nursing Assessment report, Cronulla Nursing Services, dated 26 September 2024, pages 10-14, and T-Documents, Document T13, Report of Ms McKirdy (Director) and Mr Brown (Clinical Nurse Consultant), Cronulla Nursing Services, dated 26 April 2024, pages 52-56
[75] Hearing Bundle, Document A4, Nursing Assessment report, page 14.
[76] Evidence of Ms McKirdy, 17 March 2025.
[77] Exhibit 5, Doctor McDowell's report, at page 24.
[78] Ibid, see Appendix 1 at pages 26-27 for the list of documents provided.
[81] Evidence of Dr McDowell and Counsel for the Agency's closing submissions, 18 March 2025.
[83] T-documents, Document T2, Internal Review Decision, 25 July 2024, pages 7-8.
[84] Hearing Bundle, Document A5, Behaviour Support Plan Review Report, 27 September 2024, page 19.
[88] T-documents, Document T20, Comprehensive Behaviour Support Plan, Ellen Small, 22 May 2024.
[89] Closing submissions of Counsel for the Agency, 18 March 2025.
[90] See, for example, Hearing Bundle, Document A7, Ms L's Carer Impact Statement, pages 37-39.
[91] Hearing Bundle, Document A21, Applicant's submission, dated 22 December 2024, page 82.
[92] Evidence of Ms McKirdy, 17 March 2025.
[93] Hearing Bundle, Document A4, Clinical Nursing Report, Cronulla Nursing Services, pages 10-14.
[94] Hearing Bundle, Document A6, at page 32.
[95] Hearing Bundle, Document R1, Targeted questions to Applicant's treating practitioners, dated 23 October 2024, pages 1-5
[96] Hearing Bundle, Document R2, Response to Targeted Questions of Ms Featherstone, Occupational Therapist, dated November 2024, pages 6-12.
[97] Hearing Bundle, Document A6, page 31.
[98] Exhibit 5, Report of Doctor McDowell, at pages 12-13.
[102] Hearing Bundle, Document A20, Letter from Dr Tannous, 17 December 2024, at page 78.
[103] Hearing Bundle, Document A15, Letter from Melissa Sydes, Capable Kids, dated 21 November 2024, page 67.
[104] In its SFIC the Agency noted the conflicting evidence about LVQH's behaviour at school and made submissions about the weight to be attached to Ms Featherstone's report and the commentary therein regarding LVQH's behaviours and their impact upon the availability of before and after school care for LVQH. The Tribunal notes, in this context, Ms L's evidence at the hearing (17 March 2025) that LVQH was attending after school care for one day per week until around April/May 2024, and ceased at that time (save for attendances driven by emergent work-related circumstances for Ms L).
[105] Hearing Bundle, Agency's SFIC, [46]-[51].
[107] Which are also reflected in the Agency's applicable Guideline - Reasonable and Necessary Supports, which can be viewed at Reasonable and necessary supports | NDIS
[108] National Disability Insurance Scheme (Supports for Participants) Rules 2013, Rule 3.4(a).
[109] See section 5(f) of the NDIS Act.
[111] T-Documents, Document T2, Internal Review decision dated 25 July 2024, page 6.
[112] Hearing Bundle, Document A7, Carer Impact Statement of Ms L dated 27 September 2024, at pages 36-37.
[113] Hearing Bundle, Document A21, Letter from Ms A to the Agency dated 22 December 2024, at page 83.
[114] Hearing Bundle, Document A26, Ms L's response to the Agency's Updated Statement of Issues (undated), at page 102.
[115] Hearing Bundle, Document A8, NDIS Exercise Physiology Report, Chronic Care Allied Health, dated 1 October 2024, pages 40-52.
[118] Hearing Bundle, Document A11, Supporting Letter of Recommendation, Chronic Care Allied Health, dated 29 October 2024, pages 55-58.
[119] Hearing Bundle, Document R3, Agency's SFIC, [52]-[59], and oral submissions of the Agency's counsel.
[120] Hearing Bundle, Document R3, Agency's SFIC, [53]
[122] T-Documents, Document T20, Comprehensive Behaviour Support Plan, dated 22 May 2024.
[123] Hearing Bundle, Document A5, Behaviour Support Plan Review Report, 27 September 2024, pages 15-23, at page 22.
[124] In Appendix 1 of his report dated 28 February 2025 (Exhibit 3), Dr McDowell listed the materials provided to him by the Agency to inform his assessment; pages 26-27.
[125] This would appear to be a reference to the NDIS access criteria.
[126] Evidence of Doctor McDowell, 18 March 2025, and Exhibit 3, page 20.
[127] Item 18 of the Schedule 1 Table.
[128] Hearing Bundle, Document A4, Clinical Nursing Assessment report, Cronulla Nursing Services, at pages 10-11. See also the Vineland Scale assessment commentary in Hearing Bundle, Document A6, Occupational Therapy Assessment, at page 26.
[129] Hearing Bundle, Document A6, Occupational Therapy Report, page 29.
Beezley v Repatriation Commission [2015] FCAFC 165
G v Minister for Home Affairs [2019] FCAFC 79
JQJT v NDIA [2016] AATA 478
McGarrigle v National Disability Insurance Agency [2017] FCA 308
National Disability Insurance Agency v WRMF [2020] FCAFC 79
Shi v Migration Agents' Registration Authority [2008] HCA 31; (2008) 235 CLR 286
Sutherland v National Disability Insurance Scheme [2024] AATA 411
(2008) 235 CLR 286
(2006) 227 CLR 532