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[2013] VCAT 1628
Victorian Civil and Administrative Tribunal
2013-09-27
Greg Garde J
Original judgment source is linked above.
Assisted reproduction - Extension of storage of embryos - Review of decision of Patient Review Panel - Assisted Reproductive Treatment Act 2008 (Vic) ss 5, 33 and 33A - Assisted Reproductive Treatment Amendment Act 2013 (Vic) - Interpretation of Legislation Act 1984 (Vic) s 14(2) - Reasonable grounds for extension - Exceptional circumstances - Decision of Patient Review Panel set aside - Extension granted.
HA v Patient Review Panel (Human Rights) [2013] VCAT 1628
This part confirmed that the treatment and procedures had been explained and gave advice as to the rights of Ms HA and Mr HB.
(b) 'CONSENT TO THE FREEZING AND STORAGE OF ONE OR MORE OF OUR EMBRYOS'
This consent confirmed that the freezing and storage of embryos had been explained to Ms HA and Mr HB. The consent recorded that Ms HA and Mr HB might withdraw consent to the storage of embryos at any time and may request at that time that they be removed from storage or made available for research or donated to another couple. The consent noted that the Infertility Treatment Act 1995 (Vic) (which was in force at the time) provided that:
(c) 'CONSENT TO MY HEALTH INFORMATION BEING UTILISED FOR TREATMENT, LICENSING, REGULATORY AND ACCREDITATION PURPOSES'
This consent related to the management of Ms HA's and Mr HB's health information.
These embryos will be held in long term starage [sic] for a maximum of 5 years, whether or not you are pregnant as a result of this treatment cycle.
Freezing embryos is a routine part of IVF. Under current Victorian Legislation embryos cannot remain frozen for more than 5 years unless the couple obtains an extension from the Infertility Treatment Authority (ITA).
Couples must decide what to do with their embryos before the statutory time period has expired.
(2) A registered ART provider must not cause or permit the embryo to remain in storage -
(a) if one of the persons who produced the gametes used to form the embryo has specified a storage period of less than 5 years, after that period; or
(b) in any other case, after the latest of the following days -
(i) the day that is 5 years after the day the embryo was placed in storage;
(ii) if the persons who produced the gametes from which the embryo has been formed consent to storage for a period of not more than 5 years in addition to the period referred to in subparagraph (i), the day that is the end of that additional period;
(iii) if the Patient Review Panel gives approval under subsection (3) for a longer period of storage, the day that is the end of the period approved by the Panel.
Penalty: 240 penalty units or 2 years imprisonment or both.
(3) The Patient Review Panel may give written approval for a longer period for storage of an embryo if it considers there are reasonable grounds for doing so in the particular case.
(4) An approval under subsection (3) may be subject to conditions.
It is Parliament's intention that the following principles be given effect in administering this Act, carrying out functions under this Act, and in the carrying out of activities regulated by this Act -
(a) the welfare and interests of persons born or to be born as a result of treatment procedures are paramount;
(b) at no time should the use of treatment procedures be for the purpose of exploiting, in trade or otherwise -
(i) the reproductive capabilities of men and women; or
(ii) children born as a result of treatment procedures;
(c) children born as the result of the use of donated gametes have a right to information about their genetic parents;
(d) the health and wellbeing of persons undergoing treatment procedures must be protected at all times;
(e) persons seeking to undergo treatment procedures must not be discriminated against on the basis of their sexual orientation, marital status, race or religion.
33A Patient Review Panel may approve longer or further storage of embryos
(1) If the persons who produced the gametes from which the embryo has been formed have given written approval for a specified longer storage period, the Patient Review Panel may approve the longer storage period if it considers there are reasonable grounds to do so in the particular case.
(2) If a person who produced gametes from which the embryo has been formed is unable to give written approval, or the person's written approval is unable to be obtained, the Patient Review Panel may approve a longer storage period if it considers there are exceptional circumstances for doing so in the particular case.
(3) If an application is made for approval under subsection (1) or (2) after the period for storage of the embryo referred to in section 33(2)(b) has expired, the Patient Review Panel may approve a further storage period if it considers there are exceptional circumstances in the particular case for failing to seek approval before the expiry of the period.
(4) An approval under this section may be subject to conditions.
We must construe 'exceptional' as an ordinary, familiar English adjective, and not as a term of art. It describes a circumstance which is such as to form an exception, which is out of the ordinary course, or unusual, or special, or uncommon. To be exceptional a circumstance need not be unique, or unprecedented, or very rare; but it cannot be one that is regularly, or routinely, or normally encountered.
By these words the Legislature seems to assume "inability" in a case where a notice has not been given, and to impose on the plaintiff the obligation of showing why there was inability. The great difficulty is caused by the word "unable". It is a word not of definite but of flexible meaning. Sometimes, where it is used with reference to a person, it connotes an act or series of acts which no human being could do; sometimes an act or series of acts which the particular person referred to could not in any circumstances do; sometimes an act or series of acts which this person could not in existing circumstances do; and sometimes an act or series of acts which in existing circumstances this person could do if he directed his mind to nothing else, but which, having regard to other circumstances, he could not reasonably be expected to do. It therefore sometimes involves a comparison of the various circumstances influencing action or inaction. If the contemplated action and its consequences are of trifling importance, very little may be sufficient to induce a person to say that he is unable to do it. The examples of an invitation to dinner or to join in a walk will illustrate this class of cases. On the other hand, there are cases of which those involving the giving of notice under this Statute may be examples, where much graver reasons would be required before a person should be able to say that he was "unable."
14 Provision as to effect of repeal etc. of Acts
(b) expires, lapses or otherwise ceases to have effect -
the repeal, amendment, expiry, lapsing or ceasing to have effect of that Act or provision shall not, unless the contrary intention expressly appears -
(d) affect the previous operation of that Act or provision or anything duly done or suffered under that Act or provision;
(e) affect any right, privilege, obligation or liability acquired, accrued or incurred under that Act or provision;
(g) affect any investigation, legal proceeding or remedy in respect of any such right, privilege, obligation, liability, penalty, forfeiture or punishment as is mentioned in paragraphs (e) and (f) -
and any such investigation, legal proceeding or remedy may be instituted, continued or enforced, and any such penalty, forfeiture or punishment may be imposed, as if that Act or provision had not been repealed or amended or had not expired, lapsed or otherwise ceased to have effect.
Once the appellant lodged an application to the Tribunal to review the delegate's decision, he had a right to have the decision of the delegate reconsidered and determined by the Tribunal. It was not merely "a power to take advantage of an enactment". Nor was it a mere matter of procedure; it was a substantive right. Section 8 of the Acts Interpretation Act protects anything that may truly be described as a right, "although that right might fairly be called inchoate or contingent". This was such a right. It was a right in existence at the time the 1971 Act was repealed. That being so, and in the absence of a contrary intention, the right was protected by s. 8 of the Acts Interpretation Act and was not affected by the repeal of the 1971 Act.
Does the Panel [Tribunal] consider that there are reasonable grounds for approving a longer period of storage of the embryos?
In what circumstances might extension be granted by the Panel?
Determine periods of storage for gametes and embryos, when the maximum storage time has been met or when there is a dispute about the storage.
The bill provides for the extension of storage past this time [5 years] upon the approval of the Patient Review Panel. Also, where there is a dispute between the persons whose gametes formed the embryo about how long it should be stored, the Patient Review Panel will determine whether it should continue to remain in storage or not.
For example, the embryos in storage were formed using donor sperm and the donor's written approval to continued storage cannot be obtained prior to the expiry of the permitted statutory period because the donor cannot be found or contacted by the ART provider.
Exceptional circumstances may arise, for example, where the persons for whom the embryo is stored did not receive notification from their ART provider about the impending expiry of the statutory storage period and they intend to retain their remaining embryos for their own use or donation to another couple.
the gamete provider experiences temporary incapacity from an accident or illness and is unable to advise on further storage in the lead-up to the expiration of the storage period;
a clinic has had some contact from the couple and it is apparent the couple need more time to decide what to do with their remaining embryos or are unable or reluctant to make the difficult decision to have them removed; or
a donor gamete provider's consent to continued storage cannot be obtained prior to the expiry of the permitted statutory period because the donor cannot be found or contacted by the clinic.
This first category of the exceptional circumstances provision is about providing clinics the opportunity to lawfully preserve patients' stored embryos and gametes to enable further efforts to obtain clear instructions from patients about the future storage or disposal of their stores.
In circumstances where donor gametes have been used to form the embryo and the donor cannot be located in a timely manner prior to the expiration of the storage period, an extension of storage under the exceptional circumstances provision may be granted by the panel in order to preserve the recipient couple's access to their embryos, whilst the clinic undertakes further reasonable efforts to locate and obtain written approval from the donor.
It is also intended that the exceptional circumstances provision also provides the panel with a broad discretion to approve a longer storage period if it considers there are exceptional circumstances for doing so in a particular case, such as when the donor cannot be found to provide written approval to a specified longer storage period.
This will ensure that such couples are not disadvantaged by donors who cannot be contacted, or generally demonstrate apathy to further involvement following their initial donation.
Unless the period of storage of the embryos is extended, the embryos will be lost for the purposes of treatment procedures under the ART Act, whether by Ms HA or other persons, if they were to be donated for use by others.
**(b) at no time should the use of treatment procedures be for the purpose of exploiting, in trade or otherwise - **
- (i) the reproductive capabilities of men and women; or
- (ii) children born as a result of treatment procedures;
The extended storage of the embryos is for the benefit of the donors Ms HA and Mr HB. It is not intended that the embryos be exploited in trade or otherwise.
(c) children born as the result of the use of donated gametes have a right to information about their genetic parents;
This principle is not relevant in the present circumstances.
(d) The health and wellbeing of persons undergoing treatment procedures must be protected at all times;
The extended storage of the embryos is consistent with the health and wellbeing of Ms HA. She is a primary school teacher having taught at her present school for 8 years, and before that at another school for 17 years. The evidence suggests that she would be a loving and caring mother, and would be supported by her family. As a result of treatment for cancer, her only prospect of becoming a mother is by the use of the embryos. She is likely to be extremely disappointed, and may suffer adverse impacts, if the period of storage of the embryos is not extended, and the embryos lost.
(e) Persons seeking to undergo treatment procedures must not be discriminated against on the basis of their sexual orientation, marital status, race or religion,
Are there reasonable grounds for an extension of the period for storage in the present case?
[1] All references to the ART Act within this decision are references to version 008, effective from 28 May 2013, unless expressly stated otherwise.
[2] The ART Act came into force on 12 December 2008.
[3] The ART Act (version 006, effective from 22 June 2011) s 33.
[5] The ART Act (version 007, effective from 23 April 2013) s 33A.
[6] The ART Act (version 006, effective from 22 June 2011) s 33(3).
[9] [1999] UKHL 4; [2000] QB 198, 208 (Lord Bingham of Cornhill CJ).
[10] Macquarie Dictionary (Macquarie Dictionary Publishers Pty Ltd, 5th ed, 2009) 577.
[11] Shorter Oxford English Dictionary: On Historical Principles (Oxford University Press, 6th ed, 2007) vol 1, 885.
[12] [1908] ArgusLawRp 12; [1908] VLR 214, 223 (emphasis added).
[13] Macquarie Dictionary (Macquarie Dictionary Publishers Pty Ltd, 5th ed, 2009) 1784.
[14] Shorter Oxford English Dictionary: On Historical Principles (Oxford University Press, 6th ed, 2007) vol 2, 3408.
[15] [2006] FCAFC 82; (2006) 152 FCR 1, 14 [71] - [72] (Tamberlin, Weinberg and Allsop JJ). See Leeder v Mayor, etc., of the Town of Ballarat East [1908] ArgusLawRp 12; [1908] VLR 214, 218 (A'Beckett J). See also Lui v Federal Commission of Taxation [2009] FCAFC 115; (2009) 178 FCR 289, 295 [22], 296 [27] (Stone, Edmonds and Jagot JJ); Re A Former Student and Secretary, Department of Employment, Education, Training and Youth Affairs (1997) 49 ALD 692, 696-297 [18]-[21] (DP Blow) where the Administrative Appeals Tribunal gave the word "unable" the meaning of "not reasonably able".
[16] [1992] HCA 20; (1992) 174 CLR 430, 440-1 (citations omitted); Azevedo v Secretary, Department of Primary Industries and Energy [1992] FCA 84; (1992) 35 FCR 284, 300-1 (French J); Lee v Secretary, Department of Social Security [1996] FCA 1683; (1996) 68 FCR 491, (Cooper and Moore JJ, Davies J dissenting); Ungar v City of Malvern [1979] VicRp 25; [1979] VR 259; Sisters Wind Farm Pty Ltd v Moyne Shire Council (2012) 193 LGERA 126.
[17] Extrinsic material may be utilised in the interpretation of legislative provisions under s 35(b) of the Interpretation of Legislation Act 1984 (Vic).
[18] Victoria, Parliamentary Debates, Legislative Assembly, 10 September 2008, 3451 (Mr Hulls - Attorney-General) (emphasis added).
[20] Explanatory Memorandum, Assisted Reproductive Treatment Amendment Bill 2012 (Vic) 5.
[21] Victoria, Parliamentary Debates, Legislative Assembly, 12 December 2012, 68 (Dr Napthine - Minister for Ports).
[23] [2005] VSC 180; (2005) 12 VR 485, 500-1 [83]-[85] (Hargrave J)
HA
Patient Review Panel
(1996) 68 FCR 491
(2012) 193 LGERA 126
(2006) 152 FCR 1
(2009) 178 FCR 289
(1992) 174 CLR 430
(1992) 35 FCR 284
(2005) 12 VR 485