[2021] AATA 913
General information, not legal advice.
Administrative Appeals Tribunal of Australia
2021-04-19
Original judgment source is linked above.
(a) FBJV's endometriosis causing chronic pain is, or is likely to be, permanent under subsection 24(1)(b) of the NDIS Act;
(b) the impairment has resulted in substantially reduced functional capacity to undertake relevant activities under subsection 24(1)(c) of the NDIS Act;
(c) FBJV is likely to require support under the NDIS for her lifetime under subsection 24(1)(e) of the NDIS Act; and
(d) FBJV meets the early intervention requirements in section 25 of the NDIS Act.
(a) in conjunction with other laws, give effect to Australia's obligations under the Convention on the Rights of Persons with Disabilities done at New York on 13 December 2006 ([2008] ATS 12); and
(b) provide for the National Disability Insurance Scheme in Australia; and
(c) support the independence and social and economic participation of people with disability; and
(d) provide reasonable and necessary supports, including early intervention supports, for participants in the National Disability Insurance Scheme launch; and
(e) enable people with disability to exercise choice and control in the pursuit of their goals and the planning and delivery of their supports; and
(f) facilitate the development of a nationally consistent approach to the access to, and the planning and funding of, supports for people with disability;
(g) promote the provision of high quality and innovative supports that enable people with disability to maximise independent lifestyles and full inclusion in the community; and
(ga) protect and prevent people with disability from experiencing harm arising from poor quality or unsafe supports or services provided under the National Disability Insurance Scheme; and
(h) raise community awareness of the issues that affect the social and economic participation of people with disability, and facilitate greater community inclusion of people with disability...
(a) the CEO is satisfied that the person meets the age requirements (see section 22); and
(b) the CEO is satisfied that, at the time of considering the request, the person meets the residence requirements (see section 23); and
(c) the CEO is satisfied that, at the time of considering the request:
(i) the person meets the disability requirements (see section 24); or
(ii) the person meets the early intervention requirements (see section 25).
(1) A person meets the disability requirements if:
(a) the person has a disability that is attributable to one or more intellectual, cognitive, neurological, sensory or physical impairments or to one or more impairments attributable to a psychiatric condition; and
(b) the impairment or impairments are, or are likely to be, permanent; and
(c) the impairment or impairments result in substantially reduced functional capacity to undertake, or psychosocial functioning in undertaking, one or more of the following activities:
(d) the impairment or impairments affect the person's capacity for social or economic participation; and
(e) the person is likely to require support under the National Disability Insurance Scheme for the person's lifetime.
(2) For the purposes of subsection (1), an impairment or impairments that vary in intensity may be permanent, and the person is likely to require support under the National Disability Insurance Scheme for the person's lifetime, despite the variation.
(1) A person meets the early intervention requirements if:
(i) has one or more identified intellectual, cognitive, neurological, sensory or physical impairments that are, or are likely to be, permanent; or
(ii) has one or more identified impairments that are attributable to a psychiatric condition and are, or are likely to be, permanent; or
(iii) is a child who has developmental delay; and
(b) the CEO is satisfied that provision of early intervention supports for the person is likely to benefit the person by reducing the person's future needs for supports in relation to disability; and
(c) the CEO is satisfied that provision of early intervention supports for the person is likely to benefit the person by:
(i) mitigating or alleviating the impact of the person's impairment upon the functional capacity of the person to undertake communication, social interaction, learning, mobility, self‑care or self‑management; or
(ii) preventing the deterioration of such functional capacity; or
(iv) strengthening the sustainability of informal supports available to the person, including through building the capacity of the person's carer.
(2) The CEO is taken to be satisfied as mentioned in paragraphs (1)(b) and (c) if one or more of the person's impairments are prescribed by the National Disability Insurance Scheme rules for the purposes of this subsection.
(3) Despite subsections (1) and (2), the person does not meet the early intervention requirements if the CEO is satisfied that early intervention support for the person is not most appropriately funded or provided through the National Disability Insurance Scheme, and is more appropriately funded or provided through other general systems of service delivery or support services offered by a person, agency or body, or through systems of service delivery or support services offered:
(a) as part of a universal service obligation; or
(b) in accordance with reasonable adjustments required under a law dealing with discrimination on the basis of disability.
show foci of endometriosis at the tip of appendix. There are benign endometrial glands surrounded by endometrial stroma in the muscle layer of appendix. There are collections of foamy macrophages in this area. Sections of the appendix are otherwise within normal limits.
On examination today the abdomen was soft and non tender...The uterus is anteverted and mobile and there are no adnexal masses. There is no induration, thickening or nodularity in the posterior compartment. The pelvic floor is normal to examination. There is no myalgia.
[FBJV] is describing downstream neuropathic symptoms that is causing her pain and she has had a response to the Lyrica...I will also arrange a deep pelvic scan to look for any other GI disease.
has been my client for more than 1 year now. She is suffering from endometriosis which has spread beyond her uterus to other aspects of her bowel.
Her disease is stable and permanent. She experienced chronic pain from endometriosis outside her uterus.
She got her appendix removed in 2018 and histopathology confirmed endometriosis in the appendix tissue.
She is currently being put on an analgesia regime for her pain due to chronic pain from endometriosis. She is also seeing two different gynaecologists to have her endometriosis further managed.
I hope you can help this lady as her pain exacerbation from endometriosis is extremely debilitating, causing her unable to work during the exacerbation hence loss of income. She has been given many medical certificates by myself over the last 12 months. It has severely affect her daily life and quality of life.
her activities of daily living have been severely affected to the point that she has been missing many days of work. She cannot sit for a prolonged period of time, she requires to use a walking stick to walk, she requires assistance with dressings. Home chores are difficult and they are usually helped by her husband - this includes cleaning, washing, cooking and shopping.
[FBJV] will benefit from a multi-modality treatment, especially physical therapy - rehabilitation, hydrotherapy, pelvic floor and girdle function strengthening exercises. She will also need to attend psychological intervention on regular basis to help improving her mental health. Psychological sessions will also help her cope with her pain and improve her pain to some degree.
Her conditions for her depression and anxiety are closely related to her pain secondary to endometriosis. Her endometriosis is chronic and has been found outside her pelvis. The prognosis is uncertain and is likely incurable as she has been seeing specialist for more than 10 years now. [errors in original]
Dr Valeria Lanzarone - Obstetrician Gynaecologist
Aggravating factors: Sitting up right, driving, sitting at desk > 40 mins at work, washing up, lifting children, folding clothes
Ease: laying down with heatpacks [emphasis in original]
Dr Jason Chow - Gynaecologist, Obstetrician, Pain Medicine Physician and Laparoscopic Surgeon
[FBJV] has seen me as a patient from 9 February 2018. She has the following medical conditions:
[FBJV]'s conditions are chronic and are not cured by medications or surgery.
[FBJV] has had surgery for endometriosis in 2007 and 2017 under Professor Jason Abbott, with endometriosis excised. She has been on hormonal therapy, pain medications including neuropathic medications. She pursued physical therapy through the private sector due to inaccessibility of services in the public system but she can no longer afford this. She has seen psychology through Headspace up to 25 years old but cannot afford to see a psychologist privately.
[FBJV] is unable to maintain activities of daily living in her current condition. She requires a walking aid and assistance with driving, assistance with dressing. She cannot clean, wash, cook or shopping. Prolonged sitting causes pain.
[FBJV] would benefit from multidisiplinary management including:
Physiotherapy including rehabilitation, hydrotherapy and pelvic floor and girdle function
The purpose of therapy is to improve [FBJV]'s function but these do not cure her underlying conditions. Therapy listed above will:
Mitigate the impact of [FBJV]'s conditions and impairments on her functional capacity
Prevent the deterioration of functional capacity, and
[FBJV] first consulted me on 9 February 2018. [FBJV] has chronic pelvic pain, endometriosis, pelvic girdle and pelvic floor dysfunction, low back pain and IBS.
[FBJV] experiences pelvic, back, hip and vaginal pain constantly. She has daily flares in her pain. She has reduced sitting tolerance and difficulty walking. She has pain in her bladder. She experiences pain before defaecation and altered defaecation symptoms even when stools are normal. She requires sick days from work when she is unwell. She cannot be sexually active because she has pain.
[FBJV] has had two laparoscopies for endometriosis, the first in 2007 and the second in 2017. She has trialled the Mirena and oral contraceptive pills. She has trialled medications including nortriptyline, duloxetine, pregabalin, NSAIDs, tramadol, Endone, Norspan, Targin, morphine and ketamine. She has accessed all available and Medicare billing physiotherapy that is available, trialled dry needling and massage and completed online pain based education and psychology at her own cost. She is unable to access hydrotherapy with COVID. She cannot access a psychologist because of cost.
Surgery and hormonal management have not remedied [FBJV]'sdiagnoses. Medications have managed but did not remedy. [FBJV]'sconditions are not "curable" but require management.
[FBJV] has responded with some pain reduction to physiotherapy but can only access 4 sessions. She has not been able to access sufficient treatment frequency and duration because of cost.
All long term goals (i.e. over 3 months and ongoing). Improved conditioning, sitting and exercise tolerance. Improved continued ability to remain at work at scheduled hours. Improved ability to perform activities of daily living. Reduced opioid requirements.
[FBJV] has trialled all usual pharmaceutical and non-pharmaceutical options for treatment that are available to her within cost. Given her location she has not been able to access other health care providers, including musculoskeletal, pelvic pain physiotherapy and psychology that bill by Medicare. I have advised her against surgery as I do not think that this will improve her function.
Additionally [FBJV] is unable to walk or sit for prolonged periods of time, misses work and is unable to care for her husband or her family in a regular and predict able capacity on a daily basis.
[FBJV] has not supports. I understand her husband has anxiety and has not been able to work in a meaningful capacity or care for the family and so [FBJV] works and cares for the family.
13. What is the likely trajectory and impact of [FBJV]'simpairments without and with treatment?
1. Please consider her future support needs without treatment.
2. Please consider her future support needs with treatment.
Without access to treatment [FBJV] will continue to decline in function. She has demonstrated a decline in her ability to maintain work with her current available supports that have been curtailed due to cost (mostly) and COVID.
14. Is it likely that early intervention treatment delivered now will reduce her future need for supports? Please explain in what specific way.
The earlier the intervention the earlier the possibility of improving [FBJV] conditioning and activity and prevent further decline in function.
15. Would provision of early intervention supports be likely to have any of the following benefits:
1. mitigating or alleviating the impact of [FBJV]'simpairments on her functional capacity to undertake communication, social interaction, learning, mobility, selfcare or self-management;
2. preventing the deterioration of such functional capacity;
4. strengthening the sustainability of informal supports available to FBJV, including through building the capacity of [FBJV]'sinformal support network.
16. Apart from the NDIS, are there other systems of support, like health or education, through which the support [FBJV] requires could be provided?
[FBJV] has tried access local services but is limited by availability and cost. This includes through GP referral, hospital and local health care providers. It is unrealistic to undertake this treatment in a metropolitan centre at a sustained duration. [emphasis and errors in original]
This condition causes [FBJV] chronic pain and fatigue that has affected her ability to complete activities of daily living. [FBJV] has reduced strength, mobility and walking tolerance, requiring a walking stick to ambulate effectively and has a wheel chair for longer distances. She has also reported nerve pain in her left leg causing significant pain and a limp in walking pattern, pain also disrupting her sleeping patterns and thus negatively affecting her energy levels further reducing her capacity for normal daily task completion.
[FBJV]'sgoals of exercise therapy to reduce pain, increase mobility, increase functional strength and capacity, increase walking tolerance and reduce the need for walking aids and overall increase her ability to complete activities of daily living for both herself and her family. [FBJV] has been completing 1x 30 min weekly hydrotherapy under my guidance since October 2020. [FBJV] is significantly more functional & mobile in water due to the reduced weightbearing effects of water. She has completed upper and lower body strengthening, mobility and gait exercises during hydrotherapy and is able to do so with reduced pain. [FBJV]'s confidence in her body's ability to complete exercise and her overall enjoyment of exercise has improved dramatically and has had positive effects on her social and mental health and wellbeing. Proposed continued targeted exercise prescription and participation in the form of hydrotherapy and potentially building her exercise tolerance to include Pilates exercise prescription into the future. Exercise adherence will continue to positively benefit [FBJV] and her improved pain management positively carrying over to increase functional capacity and ability to complete activities of daily living.
performed all functional tasks requested. She frequently exhaled, sighed or moaned at completion of movements. She also appeared short of breath at times during minimal activity.
[FBJV] reported she has constant pain of variable intensity. She rated her pain as ranging between 4-10/10 on the visual analogue scale, where 10 is the worst pain imaginable. She reported her pain was 5-6/10 at the start of the day but was 9/10 at the conclusion of the functional assessment.
She described a stabbing pain in her ovaries, vagina and left hip, occasionally also the right hip. Pain radiates into the buttocks, back, down her left leg and up her abdomen. She has occasional less pronounced pain in the left leg. She also feels a pulling pain in the abdomen which she attributes to post-surgical adhesions. When she has a bowel movement, the adhesions pain increases dramatically.
[FBJV] completed the Pain Catastrophizing Scale (Appendix D). She scored 32, where any score over 30 is considered significant castastrophization, with the authors noting "catastrophizing not only contributes to heightened levels of pain and emotional distress, but also increases the probability that the pain condition will persist over an extended period of time".
She also completed the Oswestry Disability Questionnaire (Appendix E), a self report of how back or lower limb pain affects everyday activity. She scored 70% - "crippled".
She was observed to be short of breath on multiple occasions during the assessment with only minimal activity.
(a) Standing - FBJV was observed standing, placing more weight on the right foot;
(b) Walking - FBJV walked with a wide base of support and minimal bending of the knees. She was able to walk across piles of clothes only occasionally holding on for support. She had a slight limp favouring the left side which became more pronounced as the assessment progressed. She did not use a walking stick for the assessment;
(c) Sitting - FBJV sat in her office chair for part of the assessment with her feet elevated on the sofa. She also sat in an upright rocking armchair for part of the assessment. She changed positions frequently. She demonstrated donning/doffing socks while seated, placing her foot on the opposite thigh to access the sock. She was able to don the sock with some difficulty and exhalation. She was able to transfer on/off chairs pushing up with her hands. She exhaled audibly when getting up. She was able to get on/off the toilet independently without holding the grabrail. She exhaled when getting up. She was able to sit in the bath, putting her weight through her arms on the sides of the bath to lower herself down. She sighed and exhaled heavily once seated. She pushed through her hands to get her feet under her, reached for the grabrail and pushed up to standing. She was able to transfer on the bed and position herself with minimal difficulty, pushing through her hands. She had more difficulty pushing up to standing, mainly through the right arm, with increased breathlessness and some unsteadiness. She demonstrated how she works in bed, sitting semi-reclined and using a tray table for her keyboard and the screen on the tallboy. When sitting down at the dining table towards the end of the assessment, she moved slowly, leaning heavily on the table with her right hand and said 'Oh God';
(d) Lifting/carrying - FBJV was able to lift a heavy casserole dish (approximately 5 kilograms) out of the cupboard and place it on the bench with great effort and much exhaling. She was able to carry the casserole dish approximately 10 metres slowly and with increasing limp. She was able to lift the lid of the casserole dish (approximately 2 kilograms) overhead with no difficulty. She was able to lift one of her sons (approximately 16 kilograms) and hold him on her right hip for a few seconds before putting him down again;
(e) Pushing/pulling - FBJV demonstrated pushing/pulling the upright vacuum cleaner briefly;
(f) Climbing - FBJV demonstrated getting in/out of the bath. She leant over and held the grabrail with her left hand, stepped over the side of the bath with her left foot and then the right, with no apparent difficulty. She was more tentative getting out as the floor height is lower than the bath height. She led with the right foot and held the grabrail with the left hand;
(g) Balancing - FBJV was able to stand on either foot and lean on the wall with one hand while taking the sock off with the other hand. She was breathless at the end of the procedure. She was slightly unbalanced at the conclusion of getting out of the bath when having to let go of the grabrail and resume upright independent standing. She was able to pick a broom off the floor by standing on her left foot and placing the right foot under the handle and lifting the leg until she could reach the handle with her right hand. She did not need to hold on for support;
(h) Stooping - FBJV was able to stoop from seated to pick up and put down the tray table next to the bed. She was able to stoop into the top loader washing machine. She demonstrated stooping to about knee height. She avoided stooping to pick up a broom, using her foot instead. She demonstrated stooping to bottom shelf of the cupboard, able to access a stacked dish but not the bottom pan. She twisted slightly when stooping to pick up a lid from the seat;
(i) Kneeling - FBJV was able to assume 2 point kneeling, holding heavily onto the bench and moving slowly with much exhaling. She appeared to return to standing with more ease, holding the bench and pushing through her hands and lower limbs. She breathed heavily and stood with her hands on her hips for several seconds after;
(j) Squatting - FBJV was able to semi-squat unsupported. When holding on, she was able to assume a full squat and return to standing with minimal difficulty, but exhaling on resuming standing; and
(k) Reaching - FBJV demonstrated she could reach to wash and brush her hair. She was able to reach up with both hands to the above head height clothesline with no apparent difficulty.
(a) she usually drives her husband PH to the shops and he does the grocery shopping;
(b) she can put the laundry in the machine. PH then hangs it out and brings it in. She folds the clothes for 15 minutes at a time then has a rest. She reported the repetitive bending causes pain;
(c) she can vacuum small areas up to a couple of times a month. She can mop for about 10 minutes once a month. She picks up after the children as needed. PH does most of the cleaning, but it is 'put on the backburner' due to childcare commitments. For example, PH cleaned the toilet before the assessment, while FBJV cleaned the vanity then slept. The rest of the bathroom has not been cleaned in a while;
(d) she prepares most of the food for the boys who are undergoing food therapy. They mostly eat sandwiches and have a daily supplement shake. PH makes the couple's main meal 99% of the time. She will make a simple meal if she is feeling okay. She will sit to chop vegetables to contribute. PH does most of the washing up; and
(e) she used to be able to mow a couple of years ago but her ability has constantly declined in the last 5 years. She is disappointed as she enjoyed the activity. She last tried about a year ago but was only able to last 20 minutes as the vibrations increased pain. PH mows when he can.
(a) multidisciplinary pain management program to provide education and strategies to increase functional activity;
(b) exercise physiology to devise a fitness program and monitor progress;
(d) occupational therapy to provide education on pacing and task modification and prescribe small aids (long handled sponge) and modifications (vertical grabrail adjacent the bath); and
(e) physiotherapy review in relation to need for mobility aids.
Please explain or elaborate on the meaning of the term deconditioning.
Deconditioning is a decline in function of body parts and/or systems, generally associated with a lack of use.
I note questions raised by NDIA at 3.4.7 and 3.6.7 ask if her function is "impacted in any way by deconditioning or self-limiting behaviours".
Deconditioning is generally caused by a lack of use of the body part and/or system. For example, if a muscle is not used it becomes wasted and less efficient when it is used.
Deconditioning also generally results in increased perception of pain when the affected body part is used. Deconditioning can also present as breathlessness on exertion, usually with lower levels of exertion than would be anticipated and in the absence of a respiratory condition.
Increased fat storage may also be present in a deconditioned individual.
In [FBJV]'s case, she is spending long hours in bed and naps during the day. She did not appear to participate in any regular exercise. She uses a walking stick in the community resulting in decreased weight through the left hip and reportedly mobilises for only 10 minutes at a time. In short, she essentially leads an inactive lifestyle due to fear of pain.
This has resulted in [FBJV] becoming breathless with minimal exertion as observed at assessment. Her breathlessness is not a direct result of her endometriosis or chronic pain.
Can deconditioning be remedied or alleviated? If so, how?
Deconditioning can be remedied by a graded return to activity.
In [FBJV]'s case, she would need to gradually build up her exercise/activity tolerances. This would best be achieved with:
Her partner may also need education to ensure he has the knowledge to support her in the process and not provide assistance with activities within her capacity which may inadvertently undermine the exercise program. [emphasis in original]
The pain can be around 8-9/10. Its hard to quantify as I live with it every day, it doesn't go anywhere.
A standard day is maybe 4/10, that's really like my zero. There is always some sort of pain, usually a dull cramping sort in my abdomen. If I do any activity then it goes up from there.
I get flare ups that are sharp, intense and radiate from the abdomen up to my hips. It's almost like I feel my bones in my pelvis and hip and feel where the pain is. Then it radiates down to my leg. The flare ups are so often per day I can't really say how many I have. I have bad pain everyday but with the flare ups, I spend the majority of the day in bed.
Triggers are standing, or any activity or movement. I know need to move, not moving can make pain worse but sometimes stuffed if you do or stuffed if you don't. It's a matter of how important of an activity. I will try hold the kids but won't walk with them. If my son is upset and runs off, he needs to be picked up, mum things like that have to take priority but it'll cause me pain and I will need to rest. I won't even be able to that for much longer as they're getting so big.
After something like the OT assessment [Kelly Walcott OT Report 24 April 2020], I was in so much pain because I had to do so much. It was a 9-10/10 pain day. I would never do that much activity in a day and the assessment was only around 1-1.5 hours. I was exhausted and in great pain for 2 days; my whole left-side went numb, I was in bed for couple of days. If it wasn't because of being in the height of COVID-19 I would have gone to hospital for pain relief.
I used to work in bed and use my laptop. But I have recently purchased a new desk chair and ensure that I get up every half hour to prevent pain. I need regular movement. I work seven hours, but I spilt it up and rest. I couldn't work more than 3 hours in a row without rest.
Usually take at least one out of three days per week off. Effectively I am working two days per week.
I had to reduce my days because I was taking so much leave. I got to the point where being at work was so uncomfortable and painful that I discussed with my boss what other things I could try. I kept going for as long as possible because we weren't sure we could afford going part time.
The pregnancy stirred everything up, I never got better after that. It affects every part of our family's life. [errors in original]
(a) FBJV's endometriosis causing chronic pain is, or is likely to be, permanent pursuant to subsection 24(1)(b) of the NDIS Act;
(b) the impairment has resulted in substantially reduced functional capacity to undertake relevant activities under subsection 24(1)(c) of the NDIS Act; and
(c) FBJV is likely to require support under the NDIS for her lifetime under subsection 24(1)(e) of the NDIS Act.
5.4 An impairment is, or is likely to be, permanent (see paragraph 5.1(b)) only if there are no known, available and appropriate evidence-based clinical, medical or other treatments that would be likely to remedy the impairment.
5.5 An impairment may be permanent notwithstanding that the severity of its impact on the functional capacity of the person may fluctuate or there are prospects that the severity of the impact of the impairment on the person's functional capacity, including their psychosocial functioning, may improve.
5.6 An impairment may require medical treatment and review before a determination can be made about whether the impairment is permanent or likely to be permanent. The impairment is, or is likely to be, permanent only if the impairment does not require further medical treatment or review in order for its permanency or likely permanency to be demonstrated (even though the impairment may continue to be treated and reviewed after this has been demonstrated).
5.7 If an impairment is of a degenerative nature, the impairment is, or is likely to be, permanent if medical or other treatment would not, or would be unlikely to, improve the condition.
8.2 When is an impairment permanent or likely to be permanent?
The NDIA must be satisfied that a prospective participant's impairment/s are, or are likely to be, permanent (i.e. likely to be lifelong) (section 24(1)(b)).
If a prospective participant has multiple impairments, the NDIA will consider each impairment separately and determine whether each impairment is, or is likely to be permanent. However, the NDIA only needs to be satisfied that at least one of a prospective participant's impairments are, or are likely to be permanent.
Where there is a possibility of medical treatment (such as surgery) to treat the prospective participant's condition, and the treatment has some prospect of success, the NDIA should not conclude that the impairment is permanent but should wait until the outcome of the treatment is known (Mulligan and NDIA [2015] AATA 974 at [71]). [emphasis in original]
Does FBJV have a substantially reduced functional capacity?
5.8 An impairment results in substantially reduced functional capacity of a person to undertake one or more of the relevant activities - communication, social interaction, learning, mobility, self-care, self-management (see paragraph 5.1(c)) - if its result is that:
(a) the person is unable to participate effectively or completely in the activity, or to perform tasks or actions required to undertake or participate effectively or completely in the activity, without assistive technology, equipment (other than commonly used items such as glasses) or home modifications; or
(b) the person usually requires assistance (including physical assistance, guidance, supervision or prompting) from other people to participate in the activity or to perform tasks or actions required to undertake or participate in the activity; or
(c) the person is unable to participate in the activity or to perform tasks or actions required to undertake or participate in the activity, even with assistive technology, equipment, home modifications or assistance from another person.
8.3 Substantially reduced functional capacity to undertake relevant activities
The NDIA must be satisfied that an impairment results in substantially reduced functional capacity of a prospective participant to undertake one or more relevant activities (section 24(1)(c)).
The NDIA is required to consider whether any permanent impairment, or permanent impairments when considered together, result in substantially reduced functional capacity to undertake one or more of the following activities:
The NDIA does not need to be satisfied that a person's impairment is 'serious', or more serious than another person's. Rather, access to the NDIS is based on a functional, practical assessment of what a person can and cannot do (see Mulligan and NDIA [2015] FCA 44 at [56]).
The NDIA will not need to consider whether a prospective participant's impairment results in substantially reduced functional capacity in relation to all of the relevant activities for every access request.
It is sufficient for a prospective participant to have substantially reduced functional capacity in relation to one activity (see Mulligan and NDIA [2015] FCA 44 at 67).
Which activity the NDIA will need to consider will depend on the circumstances and the evidence presented by the prospective participant. For example, if a prospective participant has an impairment which results in substantially reduced functional capacity to undertake mobility, but otherwise has full cognitive capacity, it may not be necessary for the NDIA to consider whether the impairment results in substantially reduced functional capacity to undertake activities related to cognition.
8.3.1 When does an impairment result in substantially reduced functional capacity to undertake activities?
An impairment results in substantially reduced functional capacity to perform one or more activities when:
The following information provides further guidance in relation to determining when an impairment results in substantially reduced functional capacity:
By itself, reliance on commonly used items will not result in a substantially reduced functional capacity to participate effectively or completely in an activity. Commonly used items include glasses, walking sticks, non-slip bath mats, bathroom grab rails, stair rails, age appropriate child safety locks, simple adapted kitchen utensils and dressing aids.
In considering the role played by assistive technology, home modifications and equipment, the NDIA will consider specific needs arising from the prospective participant's impairment, and whether those needs are met (or need to be met) through the use of specialist disability aids and/or equipment.
Such items would generally be specifically designed to assist in increasing the functional capacity and participation of people with disability and be formally prescribed by a medical practitioner, specialist clinician or allied health professional such as an occupational therapist, physiotherapist or speech therapist.
When considering whether a person requires assistance from others to participate or perform tasks associated with an activity, the NDIA will have regard to whether a person's need for assistance is consistent with normal expectations of a person of a similar age. For example, children under the age of 2 will not necessarily have a substantially reduced functional capacity because they need assistance to provide for self-care needs.
A person will be considered to be unable to participate effectively or completely in an activity if they cannot safely complete one or more of the tasks required to participate in an acceptable period of time. Undertaking a task more slowly or differently to others will not necessarily mean a person cannot participate effectively or completely in an activity.
When considering whether a fluctuating or episodic impairment results in substantially reduced functional capacity to undertake relevant activities, the NDIA will consider the impact on the person's ability to function in the periods between acute episodes. [emphasis in original]
Although an impairment may, in general terms (and, for example, in the terms of Art 1 of the Convention on the Rights of Persons with Disabilities...) be responsible for or related to a disability, the threshold in s 24 revolves around the severity and permanency of the effects of the impairments experienced by a person, so as to justify the provision of the "reasonable and necessary supports" to which participants may be entitled...
Using the concept of impairment enables assessment of the severity and permanency of a person's condition, and of the effects of that condition through not only the evidence of an applicant, but also medical and clinical evidence. The legislative scheme contemplates a relatively high degree of precision by decision-makers (see, for example, the six activities in s 24(1)(c)) in assessing what a person can or cannot do. The assessment to be undertaken is avowedly functional, and multi-faceted.
That being the case, no arbitrary limits are placed on access to the NDIS. No decisionmaker need be satisfied a person's impairment is "serious", or more serious than another person's. No qualitative judgments in that sense are called for. Rather, the legislative scheme is based on a functional, practical assessment of what a person can and cannot do. Critically, the scheme makes detailed provision for that assessment, and it is sufficient for a person to have substantially reduced functional capacity in relation to one activity. That, in my opinion, recognises the spectrum of impairments which can be experienced by persons with disabilities, and accommodates different abilities within one person in terms of her or his daily activities. That is why a detailed functional assessment is so important.
Is [FBJV] able to mobilise on her own? If not, why not?
[FBJV] was able to walk around the home independently. She reported she uses a walking stick in the community due to pain and giving way of the left hip. She reported her GP has suggested a walker but she is reluctant to use one.
It is unclear if the walking stick has been prescribed.
Please quantify and comment on [FBJV]'s walking tolerance indoors and outdoors, with and without the use of aids (please specify, how far [FBJV] can walk, on what surfaces, how long [FBJV] needs to rest before resuming walking and what aids, if any, she uses in the assessment of walking tolerance with aids).
She walked around the home with standing and seated breaks for about half an hour during the functional assessment. She was only observed over short distances (about 10-20m at a time). She walked slowly and with a limp favouring the left side. The limp became more pronounced as the assessment progressed and with loading.
She was frequently short of breath with any activity.
She walked on carpet, hard floor surfaces, pavers and on piles of clothes.
What type and level of assistance (if any) does [FBJV] need to support her to independently mobilise? What does this support involve? (if aids/devices are used, specify)
She does not require an aid to independently mobilise within the home.
From my observations, she did not appear at risk of falling during general mobility tasks, even when walking over piles of clothes. Instability was noted with some transfers only.
While she has reportedly been recommended to trial a walker, it is unclear on what basis this recommendation was made.
Does [FBJV] currently use any aids? If not, what aids would be recommended and why?
At my assessment, she did not appear to need a mobility aid. Physiotherapy assessment is recommended to determine need for an aid over greater distances.
Will these supports, or any others you may recommend (including aids), likely reduce [FBJV]'s future disability specific support needs? If so, how?
In my opinion, [FBJV]'s mobility tolerances are primarily impacted by pain and deconditioning. Use of a walking stick is unlikely to increase mobility tolerances. If she was willing to use a wheeled walker, this may increase tolerances as she could sit on the inbuilt seat to rest.
Is [FBJV]'s function impacted in any way by deconditioning or self-limiting behaviours that could be addressed by rehabilitation or others intervention designed to increase function and independence? If so, please identify what body parts/regions are involved, what tasks are likely impacted, what intervention may address this and your clinical reasoning behind this recommendation
Yes. [FBJV] appeared significantly deconditioned at my assessment. She was frequently short of breath with minimal exertion. She acknowledged she has become increasingly inactive in recent years and is not fit.
She may benefit from attendance at a multidisciplinary pain management program, available through the public hospital system, to encourage a graded return to activity. It is acknowledged she would have difficulty attending this program due to her parenting responsibilities.
She may also benefit from exercise physiology input and gym program to gradually increase her fitness. [emphasis in original]
the threshold requirements to achieve functional capacity in relation to this activity are relatively modest. A person has functional capacity if they can move about their home, get in and out of a bed or a chair, and mobilise in the community. Movement in the home does not need to be achieved by walking; a person might even crawl from room to room. The Concise Oxford Dictionary defines mobile as movable, not fixed, free to move_._
The use of the phrase move around...to undertake ordinary activities of daily living in the Guideline is significant. It implies some expectation of how far a person needs to be able to move to undertake ordinary daily activities, say, getting to the bathroom to wash or toilet, getting to the kitchen to prepare food, perhaps getting to the front letterbox to collect mail. Implicit in this concept is that the distances involved will be relatively short. Significantly, the concept does not include being able to move around in the community for the purpose of accessing services, such as shops, the bus stop or the local park - the phrase moving about in the community is not qualified in the same way that move about the home is qualified by to undertake ordinary activities of daily living. To define mobility by the ability to reach local services would be to make it a function of where one lived. A better application of the concept is to ask whether a person can move about in shops or a park once they have reached them, say by car or public transport.
No particular distance is specified in the Guideline as defining this level of mobility, but it seems reasonable to suggest that a person who can travel 50 m by herself has the capacity to do the things referred to in the Guideline. That view would be consistent with the decisions of the Tribunal in Holmes and MHZQ.
the Tribunal appears to have approached the concept of "substantially reduced functional capacity" in s 24(1)(c) as if it is exhaustively defined by r 5.8. That is not necessarily the case. As a deeming provision, r 5.8 has the effect of mandatorily including some people in the category of persons with substantially reduced functional capacity if the criteria in r 5.8(a), (b) or (c) are met. In that sense, a decision-maker must turn his or her mind to whether an applicant falls within the deeming effect of r 5.8. That is not necessarily the end of the exercise in terms of s 24(1)(c). The statutory task remains to consider whether a person's functional capacity is substantially reduced in any of the six specified areas.
The Macquarie Dictionary Online defines "effective" as meaning "serving to effect the purpose; producing the intended or expected result" and "complete" as "having all its parts or elements; whole; entire; full". The Tribunal considers that this could not be said of Mr Ditchfield's capacity to mobilise if he is able to drive to places or facilities within the community but is unable to leave the car park to go inside of those facilities, or walk around those places, without experiencing pain or risking falling over. The Tribunal is satisfied that Mr Ditchfield 's mobility to this extent is both incomplete and ineffective.
Endo impact[s] on how I get dressed because it dictates the types of clothing I chose.
Bending and lifting legs at same time to get dressed is hard. I can really hurt myself even sitting. When you're living with pain it can be made worse by doing even a normal movement. Usually I get PH to help with getting dressed and with putting on stuff lower down i.e. pants and underwear.
Usually I don't bother with bras, I stopped years ago. If I am wearing one PH usually has to help. I only wear wireless so it's less pressure on my chest.
I always wear tights because they are elastic wasted and don't put too much pressure on my stomach which causes a lot of pain. I used to live in jeans but can't wear them anymore. The clothing has to be light fabric. When I'm in pain my temperature goes up and causes me to sweat. I get sweaty a lot. In winter I don't really feel the cold because I am always really hot.
I pretty much only wear thongs that I can slip on and off.
I keep my hair short, its all shaved because of sweat. It gets gross pretty quick.
Activities like bath and toileting cause pain because they are using your core. I rarely use the shower due to standing. The heat of the bath is assistive, it helps soothe pain at least while I'm in it. Heat doesn't last long, once you get out it stops working. Showering and bathing is exhausting and I am very tired and very sore afterwards.
PH does all the yard work but he is time poor because of other high needs care he does. I can't do mowing at all because of the combination of vibration and walking. It's pretty much overgrown all the time.
For our family PH does all the laundry, cooking and cleaning. For things like hanging clothes, I might be able to do initially as one off, so long as basket was waist height and there was no bending. I couldn't do it for long because of the lifting and a lot of movement. I avoid this activity as it triggers pain.
I can't do the cleaning either. I might be able to clear a surface of clutter and quickly wipe but then I would need couple of hours to sleep as I'd be really sore after that. The scrubbing motion doesn't do me any good.
Most of the time try get PH to the vacuuming do but if he has too much other stuff to do, I can only try do small area, like part of the lounge due to the motion backwards and forwards, it makes my leg cramp and exacerbates pain.
PH prepares all the food. I can only do simples meal i.e. microwave something or something that's not too long on stove and doesn't need stirring so I'm not standing there.
Probably once a fortnight I sit at the dining table to chop and peel vegetables. I can do tasks longer when sitting than standing. If I did do a full stew's worth like the OT said [Kelly Walcott OT Report 24 April 2020] I then wouldn't be able to actually cook the stew. PH does the rest and I go to bed and go to sleep for couple hours. I'd need to take some breakthrough medication.
I do the groceries occasionally, not often, less than once per month. If I do the shopping, PH carries them inside. It's only a small one meal sort of shop, nothing too involved. I am only lifting from the trolley to car and not walking with any of it due to the pain. By the time I get home, I am limping in incredible pain. It takes ages to do it because I walk so slowly. I am done after this. I have to rest for quite a while. I come home, take meds and go to bed for rest of day. It takes a 5-6 hour sleep or rest after to recover.
Is [FBJV] able to manage her own self-care? If not, why not?
[FBJV] is able to perform most personal care independently. Her husband provides occasional assistance with transfers, washing her back and dressing tasks.
What type and level of assistance (if any) does [FBJV] need to support her to effectively manage self-care tasks? What does this support involve? (if aids/devices are used, specify)
Her husband provides occasional hands on assistance with transfers, washing her back and dressing.
There is a grabrail next to the toilet which she does not need to use. She uses the horizontal grabrail next to the bath to assist with transfers.
In my opinion, she could be independent with provision of equipment (long handled sponge), task modification (consistently sitting to dress) and minor modifications (additional vertical grabrail to further facilitate bath transfers).
Does [FBJV] currently receive this support? If so, who currently provides this support?
Her husband provides occasional hands on support. She mostly sits to dress and has modified her clothing choices to maximise independence.
Will these supports, or any others you may recommend, likely reduce [FBJV]'s future disability specific support needs? If so, how?
Provision of equipment, education on task modification and additional grabrail should facilitate independence in personal care.
Is [FBJV]'s function impacted in any way by deconditioning or self-limiting behaviours that could be addressed by rehabilitation or others intervention designed to increase function and independence? If so, please identify what body parts/regions are involve, what tasks are likely impacted, what intervention may address this and your clinical reasoning behind this recommendation.
Yes. As noted above, she was frequently breathless. It is unclear if her occasional unsteadiness was of organic origin as opposed to decreased confidence. Provision of fitness program as noted above, plus advice on pacing and task modification and provision of equipment should facilitate sustained independence. [emphasis in original]
Is FBJV likely to require support under the NDIS for her lifetime?
8.5 When is a person likely to require support under the NDIS for their lifetime?
The NDIA must also be satisfied that the prospective participant is likely to require support under the NDIS for the rest of their lifetime (section 24(1)(e)).
If an impairment varies in intensity (for example, because the impairment is of a chronic episodic nature) the person may still be assessed as likely to require support under the NDIS for the person's lifetime, despite the variation (section 24(2)).
The NDIA is required to consider a prospective participant's overall circumstances and conclude that the person will require support under the NDIS for their lifetime. The purpose of this requirement seems to be to distinguish that subset of people with serious and permanent disabilities who are intended to be the beneficiaries of funded supports (Mulligan and NDIA [2015] AATA 974 at [153]).
For example, if a person's support needs arise from a health condition and are most appropriately provided through another service system (i.e. the health system) then the person will not require support under the NDIS for their lifetime. Rather, the person will require support under the health system.
When considering this criterion, the NDIA does not need to be satisfied that the support/s required for the person's lifetime meet the reasonable and necessary criteria. The reasonable and necessary criteria are relevant to whether funding is provided, not whether a person meets the disability requirements (see Mulligan and NDIA [2014] AATA 374 at [53] and Mulligan and NDIA [2015] AATA 974 at [146]-[150]). [emphasis in original]
Deciding whether provision of early intervention supports is likely to benefit the person
6.8 Where paragraph 6.2(a) applies to a person, the main way in which the CEO can determine whether the provision of early intervention supports is likely to benefit the person in the ways set out in paragraphs 6.2(b) [reducing future need for support] and (c) [improving capacity] above is to consider evidence going to those matters, as indicated in paragraph 6.9 below. However, young children who have an impairment resulting in developmental delay (see paragraph 6.10) or resulting from a particular condition (see paragraph 6.11) will not need to provide further evidence of the matters in paragraphs 6.2(b) and (c).
6.9 In deciding whether provision of early intervention supports is likely to benefit the person in the ways mentioned in paragraphs 6.2(b) [reducing future need for support] and (c) [improving capacity] above, it is expected that the CEO would consider:
(a) the likely trajectory and impact of the person's impairment over time; and following:
(b) the potential benefits of early intervention on the impact of the impairment on the person's functional capacity and in reducing their future needs for supports; and
(c) evidence from a range of sources, such as information provided by the person with disability or their family members or carers. The CEO may also in some cases seek expert opinion. [emphasis in original]
9.3 Determining whether early intervention supports are likely to benefit the person
The NDIA must be satisfied that the provision of early intervention supports (except for children with developmental delay) is likely to benefit the prospective participant by:
i. mitigating or alleviating the impact of the person's impairment upon the functional capacity of the person to undertake one or more activities (section 25(1)(c)(i)); or
ii. preventing the deterioration of such functional capacity (section 25(1)(c)(ii));
iii. improving such functional capacity (section 25(1)(c)(iii); or
iv. strengthening the sustainability of informal supports available to the person, including through building the capacity of the person's carer (section 25(1)(c)(iv)).
When considering whether the provision of early intervention supports is likely to benefit the person, the NDIA should consider:
When considering if a person is likely to benefit from early intervention supports, the NDIA may consider factors such as the time elapsed since the onset or diagnosis of the disability and whether there has been a recent, or impending, significant change in the person's impairment or disability. [emphasis in original]
The objective of early intervention support is expressed to be to 'lower the costs and impacts' associated with the disability for individuals and the wider community over the longer term. Accordingly the early intervention requirements look at the likely trajectory and impact of a person's impairment over time and the potential benefits of early intervention on the impact of the impairment on the person's functional capacity.
I certify that the preceding 175 (one hundred and seventy-five) paragraphs are a true copy of the reasons for the decision herein of Member W Frost.
................................[sgd].......................................
[3] Exhibit R1, T15, page 40; T16, pages 41-43.
[6] Drake and Minister for Immigration and Ethnic Affairs (No 2) (1979) 2 ALD 634.
[34] Howard and National Disability Insurance Agency [2019] AATA 2 at [25].
[35] Macquarie Dictionary, (online at 17 March 2021), 'remedy'.
[51] Applicant's Statement of Facts, Issues and Contentions dated 18 December 2020, page 12.
[52] Mulligan at [52]; and [55]-56.
Arnel and NDIA [2019] AATA 4778
Ditchfield and NDIA [2019] AATA 2121
Howard and National Disability Insurance Agency [2019] AATA 2
James and NDIA [2019] AATA 4248
Jourfian and NDIA [2020] AATA 1883
Madelaine and NDIA [2020] AATA 4025
Mulligan v National Disability Insurance Agency [2015] FCA 544
Schwass and National Disability Insurance Agency [2019] AATA 28