HZC [2019] NSWCATGD 8
[2019] NSWCATGD 8
At a glance
Source factsCourt
NCAT Guardianship
Decision date
2019-04-01
Before
Ms J
Catchwords
- GUARDIANSHIP - End of term review of guardianship order -guardianship order renewed.
Source
Original judgment source is linked above.
Catchwords
Judgment (15 paragraphs)
Background
- HZC lives in fully-supported accommodation in [suburb of greater Sydney], NSW, provided by a registered NDIS service provider.
- HZC is diagnosed with 1p36 deletion syndrome which is a congenital genetic syndrome associated with a number of medical complications including seizures, cardiac abnormalities, cardiomyopathy, developmental delay, hearing impairments, cleft palate, hypothyroidism and strabismus.
- Medical reports indicate that as a result, HZC did not develop as she otherwise would have and that she has a severe intellectual disability.
- It is reported that HZC is limited in her ability to understand and use language to express herself and has difficulty understanding information, particularly when concepts are new, abstract or where several pieces of information are presented to her at once.
- The opinion of those who treat HZC is that she also has an anxiety disorder, meaning she persistently experiences worry about aspects of her life including her social relationships and daily routine. This causes her distress and disruption to her ability to complete her regular activities. Her anxiety is said to affect her physically in that she experiences restlessness, tension and sleep disturbance which also impacts upon her mood, resulting in irritability and episodes of heightened distress. During those episodes, HZC can behave in a dysregulated, aggressive manner that places her and others at risk of harm.
- Since 2017, the Tribunal has made and renewed guardianship orders appointing HZC's parents, TXC and TYC, as her guardians; most recently with the authority to make decisions about her accommodation, health care, to consider consent to medical and dental treatment, restrictive practices, the services she receives, and to advocate generally on her behalf.